1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

suzanne2 | @suzanne2 | Jul 26, 2020

I know this is over the counter but it does help my fibromyalgia pain...Penetrex. I buy it through Amazon and have the cream and roll on. It really helps me. Rub it into the sore areas on my arms, neck etc, especially at bedtime, and it gives me relief. It also does not have an odor which is great if you use during the day and want to go out.

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lioness | @lioness | Aug 19, 2020

I take a hot shower that helps a lot also Amish arthritis cream from Amazon

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eleanork | @eleanork | Oct 20, 2020
In reply to @lioness "@karen00 I'm feeling pretty good If I didn't have sciatica now If he a lot better..." + (show)
@lioness

@karen00 I'm feeling pretty good If I didn't have sciatica now If he a lot better As for fibromyalgia this is the 2nd day I've only taken Magnesium Malete for fibro I think it maybe helping me better then Fibro Malic Thanks for asking hope your doing well

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@lioness, Hello, I’ve used Mag Oxide for severe nonstop foot spasms. Worked a bit, but an Epidural stopped it for a year now.
DX with Non diabetic PN in 2000 ! Thought I had taken every Vit/ Supplement on earth until I saw your mention of Mag Malate. Did it take long to work for you ? Another Neurologist appt. on Tuesday #4. PCP’s don’t seem to get it. Also looking into a outside the body, knee to ankle/ feet stimulator. I failed balance test years ago. Now at 76 , my ankles are so “ wobbly “. I’ve really had it by now. Thank You PS- of course the Fibromyalgia and Osteo, Sjogrens, 2 brain aneurysm. With COVID getting bigger and bigger,!

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1 reply
lioness | @lioness | Oct 24, 2020
In reply to @eleanork "@lioness, Hello, I’ve used Mag Oxide for severe nonstop foot spasms. Worked a bit, but an..." + (show)
@eleanork

@lioness, Hello, I’ve used Mag Oxide for severe nonstop foot spasms. Worked a bit, but an Epidural stopped it for a year now.
DX with Non diabetic PN in 2000 ! Thought I had taken every Vit/ Supplement on earth until I saw your mention of Mag Malate. Did it take long to work for you ? Another Neurologist appt. on Tuesday #4. PCP’s don’t seem to get it. Also looking into a outside the body, knee to ankle/ feet stimulator. I failed balance test years ago. Now at 76 , my ankles are so “ wobbly “. I’ve really had it by now. Thank You PS- of course the Fibromyalgia and Osteo, Sjogrens, 2 brain aneurysm. With COVID getting bigger and bigger,!

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@eleanork Sorry to be so late in answering . Seems my cell phone and laptop don''t like each other I get post on one but not the other . Anyhow the mag malete doesn't take long to accumulate in the system . I take during the day and split in evening about 600 mg. Especially at night keeps RLS away from me . A fibro group I belonged to awhile ago said we need more mag. then most people and for me its mag. malete . Ive tried oxide and it didn't do anything for me . Take care

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1 reply
Hank | @jesfactsmon | Oct 25, 2020
In reply to @lioness "@eleanork Sorry to be so late in answering . Seems my cell phone and laptop don''t..." + (show)
@lioness

@eleanork Sorry to be so late in answering . Seems my cell phone and laptop don''t like each other I get post on one but not the other . Anyhow the mag malete doesn't take long to accumulate in the system . I take during the day and split in evening about 600 mg. Especially at night keeps RLS away from me . A fibro group I belonged to awhile ago said we need more mag. then most people and for me its mag. malete . Ive tried oxide and it didn't do anything for me . Take care

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@lioness @eleanork
Eleanor, everything I have read recently about magnesium supplements seem to say that magnesium oxide is the least absorbable kind to take. Better are magnesium citrate, magnesium glycinate or magnesium malate as they are all more absorbable. I have read the the malate kind is thought by some to be best for fibro. Best, Hank

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Parus | @parus | Oct 25, 2020

Citrate and malate work the best for me. I know I can tell when I forget to take thus.

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2 replies
wheelerma | @wheelerma | Oct 25, 2020

You may know this already. I SUFFERED with myofascial pain for years, especially in my upper back. Then I found a person who had taken many classes in myofascial release. I haven't had even a twinge of pain since then. She is a massage therapist and an angel!

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1 reply
wheelerma | @wheelerma | Oct 25, 2020

I wrote this at the bottom of the page but will write again in case you can't see the bottom. I had myofascial pain for years. Then I found a massage therapist who had taken many classes on this pain. I haven't had pain in my back/trigger points in three years. Another procedure would be trigger point therapy which I had but the pain came back. Good luck!

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irene5 Irene Estes | @irene5 | Oct 25, 2020
In reply to @wheelerma "You may know this already. I SUFFERED with myofascial pain for years, especially in my upper..." + (show)
@wheelerma

You may know this already. I SUFFERED with myofascial pain for years, especially in my upper back. Then I found a person who had taken many classes in myofascial release. I haven't had even a twinge of pain since then. She is a massage therapist and an angel!

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Myofascial pain is the worst pain ever. ( and that is putting it mildly). I’m glad you have found some relief. irene5

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lioness | @lioness | Oct 25, 2020
In reply to @parus "Citrate and malate work the best for me. I know I can tell when I forget..." + (show)
@parus

Citrate and malate work the best for me. I know I can tell when I forget to take thus.

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@parus I've never used citrate before I,ll have to research it but Malete only maybe both would be better

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