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DiscussionWondering if we are making the right choices in our NET fight.
Neuroendocrine Tumors (NETs) | Last Active: Dec 28, 2024 | Replies (9)Comment receiving replies
Replies to "Has your team discussed a liver directed therapy such as embolization? There are 3 types: bland,..."
Thanks for those suggestions. I have investigated Histotripsy right after it was approved by the FDA in the fall of 2023, in the hopes we might be able to use it. As soon as a few months ago, our medical team, who participated in the trials of histotripsy, could not reccomend it in our case, being so new, and not having enough data on it over time. The first three you mentioned, we have done 2 of the 3. We also had 2nd opinions from Mayo, and Dr. Liu in Denver, on the transplant option. We appear to be a rare case that this is an option, we were able to speak to a transplant patient from over 8 years ago, and got some good information along with our medical team, to proceed. I'm just trying to find more than that one person who had it and had NET, to get any feedback or suggestions as it may be coming up in days to weeks for my wife.