How many of you improved your osteoporosis without drug intervention?

Posted by deblb @deblb, Nov 28 8:13pm

I was just diagnosed with osteoporosis and had my first Prolia injection about a month ago. I have never had any health issues, I am 65 and have never been on medication. I was blind sided and of course didn't ask questions of my doctor and had no tests done other than the bone density scan only because it was recommended at my age. I am getting the Bone density report from my doctor, a GP, next week and I want to know what I should be asking her, should I request a referral to an endocrinologist?
I also want to know if anyone has stopped Prolia after 1 injection and is there a risk of rebound fractures? How many of you improved bone density with natural approaches. I am reading that bone density increases with Prolia because the 'dead' bone is not removed and new bone is deposited onto the old bone, not really improving bone quality. There is just so much information out there and hard to know what is fake and what is real.
Thanks for your help

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I go to a GP as of this writing. However July I will be seeing an internist. Internists are up to speed on the older adult issues. If you can find an endocrinologist who is also a PCP, then you have hit the jackpot. Internists specialize in adult medication. I had an internist physician in Syracuse NY who had an endocrinologist on board. It was a marriage made in heaven. I was in my early 70's when I retired and in very good health, thanks to them!

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I agree with you. It seems like all of us taking these osteoporsis medications are mice in a lab.

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@firef1y

I agree with you. It seems like all of us taking these osteoporsis medications are mice in a lab.

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For those of us with severe osteoporosis or fractures, the medications can be life-saving, literally. Bur more research is needed on best protocols, combinations, sequences and dosages. I had side effects but am grateful for Tymlos.

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@JustinMcClanahan

Hi @mary1007, I combined your discussion with an existing discussion titled:

"How many of you improved your osteoporosis without drug intervention?"
- https://connect.mayoclinic.org/discussion/how-many-of-you-improved-your-osteoporosis-without-drug-intervention/

I did this so you could meet the many members talking about trying to manage osteoporosis with both medications and additional techniques.

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Muchas gracias

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@glnamcgr

I’m certainly no expert, but i am fundamentally sceptical of most supplements. First of all, they are not regulated by the FDA; not that FDA approval makes drugs safe! Secondly, it is very difficult to know what amount of a supplement we need and overdosing can be very dangerous. Thirdly, we need to get our vitamins and minerals from food as they are much easier to absorb.

Regarding calcium, some studies have shown that taking calcium supplements is linked to kidney stones and cardiovascular disease.
The connection between calcium and cardiovascular disease is plausible. Calcium deposits are part of artery-clogging plaque. They also contribute to stiffening of the arteries and can interfere w the functioning of heart valves.

Given the uncertainty about the balance of benefits and risks of calcium supplements, it's probably best to get the calcium you need from dietary sources.

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I agree and have started egg shell calcium. I make my own.

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@glnamcgr

hi Mary

It has been my experience that there are no general practitioners, rheumatologists or endocrinologists who will recommend anything other than lifelong drugs for osteoporosis. I have had osteoporosis for 25 years and I have done much research on osteoporosis, bone drugs, and their side effects. I will never ever take a bone drug. For me, the benefits do not outweigh the risks. I have read several books on this topic, watch many videos, read several clinical trials to help me make this decision. I believe one of the best sources for information are support groups, such as this one. Another great support group is called HealthUnLimited. I just finished a book, which you can download, called Osteoporosis Reversal Secrets by Igor Klibanov. I found it a very good resource.

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I wish I had stuck to my guns and not taken any of those horrid osteoporosis drugs. I got a reclast infusion and had a terrible reaction and have been very sick. I will get better supposedly it takes a while. There are times when risks outweigh benefits. This was not one of them. Diet and exercise going forward

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@fmd2015

Thank you for sharing. I, too, have just received a bad report. I don't know what my T- score is but I will find out. Will check back here to see your comments and disclose more info about my case. Thank you again for sharing.

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Salut
Merci pour votre réponse.
On se tient au courant.
Bon courage

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@annar

I wish I had stuck to my guns and not taken any of those horrid osteoporosis drugs. I got a reclast infusion and had a terrible reaction and have been very sick. I will get better supposedly it takes a while. There are times when risks outweigh benefits. This was not one of them. Diet and exercise going forward

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@annar please let us know if you have had the common "acute phase reaction" (can last a few weeks) which tends not to recur.

For anyone with significant osteoporosis I am wondering why Reclast is being chosen but I may be missing some of the story.

For some, hydration, longer infusion, tylenol and even lower dose of Reclast can help avert the acute phase reaction.

I am sensitive to meds but have been able to make Tymlos, Evenity and now Reclast work for me by making some adjustments with my doctor, mainly in dosing. But with fractures I do not have the choice to stick to diet and exercise!

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@windyshores

@annar please let us know if you have had the common "acute phase reaction" (can last a few weeks) which tends not to recur.

For anyone with significant osteoporosis I am wondering why Reclast is being chosen but I may be missing some of the story.

For some, hydration, longer infusion, tylenol and even lower dose of Reclast can help avert the acute phase reaction.

I am sensitive to meds but have been able to make Tymlos, Evenity and now Reclast work for me by making some adjustments with my doctor, mainly in dosing. But with fractures I do not have the choice to stick to diet and exercise!

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If low potassium, fainting esophagitis and acute colitis are conditions of acute phase reaction. Then that’s what happened to me. My pcp seems to think so
I have no bone fractures. My endocrinologist only suggested reclast might not be the best choice because it works slowly. Never was there a mention of this side effect. I chose it because I read about how few side effects there are. I appreciate the need for these drugs, but I guess I made the wrong choice. I just hope I can get healthy again soon. I am now 100 lbs. not great for a 64 yr old.
With osteoporosis. I’m terrified!! Thank you for chatting about this with me

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@dabell1004

I have been doing quite a bit of research on bone density and how to improve it. I was diagnosed with osteoporosis about 2 years ago, -2.5 score, which is borderline. I have broken many bones over my life, most having nothing to do with osteoporosis, the first being fractured tibia and fibula when I was 13 years old, and a fractured fibula, same leg, a year later. I am 74 now. The last fracture was about two years ago, while hitching up a camper trailer to my car, I felt a pop, and oh the pain. I had fractured L4, which I am pretty sure is osteoporosis related. I've started on Fosamax, and I hate it. It gives me the worst constipation of my life.

From my research, I've learned that the absolute best way to strengthen bones is exercise, particularly strength training, weight lifting, etc. But now, as of this past spring, I've been diagnosed with breast cancer, Stage 1, Grade 1, hormone positive, and HER2 negative. It was a tiny 6mm tumor found on a routine screening mammogram, and for which I felt nothing. I've had a lumpectomy and radiation, and I am now considered cured, but on an aromatase inhibitor, Letrozole, for the next five years to prevent a recurrence. I have none of the lousy side effects that many women experience on letrozole, except that it will invariably result in bone loss. I need that like a hole in the head.

My point for writing this is I am planning to take the fosomax for a while, as a kickstarter to bone development, but using bone strengthening exercises as my main modality for bone strengthening. In about a year, I plan to completely go off the fosamax. I have read that using fosomax as a kickstarter is a good strategy, as long as you follow through with a consistent exercise program. That's my plan. Hope this helps.

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Have you tried drinking two glasses of water with your Fosamax to prevent constipation? Also, the generic for Atelvia is taken after a meal. That may go down well with two glasses of water. Something to consider, if it is easy to try once or twice.

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