1. < Head & Neck Cancer

Newly diagnosed and scared

Posted by Julie H @jkhagen1, 6 days ago

Hi folx, my "Thanksgiving Eve" tongue biopsy revealed stage 1 HPV squamous cell carcinoma. I understand it's treatable and the 7 weeks of chemo/radiation sounds really scary. How did you cope? I am confident I have a great care team, just want to hear from real people who might have some wisdom to share. Peace be with you.

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Mentor
William Olsen, Volunteer Mentor | @hrhwilliam | 1 day ago
In reply to @deb26 "My husband is going through proton radiation treatment now. Before he agreed to proton radiation on..." + (show)
@deb26

My husband is going through proton radiation treatment now. Before he agreed to proton radiation on his neck, he asked to see the statistics and research indicating a better outcome with neck radiation. His doctor provided that and my husband decided to go ahead with the treatments in his neck area. My husband's cancer is in one of his sinus cavities.

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Hi @deb26 and welcome to our head and neck group. Proton is the best for accurate zapping with minimal peripheral damage. Good luck and if you have any questions or concerns, this is the place.

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jersey3422 | @jersey3422 | 1 day ago
In reply to @jkhagen1 "Thank you so much for sharing your story. Because of where the tumor is, they believe..." + (show)
@jkhagen1

Thank you so much for sharing your story. Because of where the tumor is, they believe chemo/radiation will be most effective and (I suppose) more humane. I just turned 60 yesterday, and hearing from someone close to my age who has beat this gives me hope.

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I too have had HPV tonsil cancer and just wanted to say all of the comments here are spot-on. Don’t be afraid of the unknown! Fight like you’re in a boxing match and you MUST be victorious! It’s a tough road, but it’s doable if you don’t give up. I was 62 when I went through this process. It’s gets better just give yourself some time. I thought I would be better in a month and pushed myself too hard. LISTEN to you Drs but more importantly your body. 🙏🏼

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jersey3422 | @jersey3422 | 1 day ago
In reply to @jkhagen1 "Thank you." + (show)
@jkhagen1

Thank you.

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I started my own Facebook page with friends too because I wanted people to support me and who I could share my fears with. If you want to read my story as it progressed-Jersey’s-Karen’s cancer journey. Praying 🙏🏼 for you to find peace.

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