← Return to My Experience on Evenity for Treating Osteoporosis

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@katgirl

Thank you so much for responding! We sound very similar. I am a delayed processor as well which is so difficult in a medical setting. I didn't realize until I had gotten home that my doctor had muttered something under her breath about a consultation at an osteoporosis clinic, but that they would say the same thing (reclast).

Do you mind if I ask what your t-scores were?

I would love to hear what your dexa scores are in March!

What really has me a bit irritated at the moment is that when I asked about trying to make lifestyle changes, she said that if I went that route, the soonest I could get another Dexa would be two years from now and what if I got way worse in that time. And yet, if I get reclast, then I get dexa a year later. It's all down to the insurance company apparently. But the other very real problem is it takes nearly a full year to even get an appointment once your doctor puts the order in. Side bar, but by the time I get my colonoscopy in June, I will have been waiting almost TWO years from the time my doctor put the order in. (OK, rant over)

I have rescheduled my infusion from January 3 to January 30th to allow me to have another appointment with my primary to ask about the osteoporosis clinic and to see my dentist to make sure my teeth are OK. Depending on what happens at those two appointments I may push it out again.

I feel ridiculous even typing this, but the problem I'm facing currently is finding a vitamin D that I tolerate. Years ago I took prescription vitamin D and had absolutely no problem with it. I couldn't even tell I was taking anything. So why I'm having problems with over the counter vitamin D has me flummoxed. It's hard finding supplements when you are a celiac. So many are contaminated with gluten. Anyway, I stopped trying over the holidays because didn't want upset stomach or diahrea. My next attempt will be a vegan formulation.

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Replies to "Thank you so much for responding! We sound very similar. I am a delayed processor as..."

Please don't feel ridiculous about any of it, your feelings or reactions, which are justified and very understandable. I can't recall at the moment but lowest numbers in femoral necks, between -2.6 and -3, around that in hips too, oddly no osteoporosis (as of 2023) in spine, or very little if I recall. I too asked about going to physical therapy and she said PT is for when you have an injury. I read so many conflicting reports and advice, became kind of obsessed, then hired a personal trainer close to my age and happened to find a physical therapist (went initially for a labrum tear) who knew a lot about osteoporosis and I got a script to see him for exercises, so at least partly covered by insurance unlike my personal trainer, though she is well worth it. I've also been very low in Vit. D over the years, have some absorption issues but not celiac, and take 7,000 most days. I'm so sorry about the celiac, that is just an insult to injury. Have you looked into Vit. D drops? I don't want to presume your financial situation but it sounds like Dexas aren't very expensive (relatively speaking) and you could get one self-pay. The fact that they don't give us Dexa at our last period is particularly outrageous when you hear that it's not a terribly expensive test. I felt I was too young for osteo meds since they can only be taken for a few years, not sure what I was going to do in say 10 years if my numbers decreased substantially. I don't know if you can access this site but I check them regularly since supplements aren't regulated and random people on the internet will recommend all kinds of things, https://www.consumerlab.com/answers/how-can-i-find-supplements-that-are-gluten-free-on-consumerlabcom/gluten-free-supplements-consumerlab/ Feel free to reach out privately too, there must be a way to do that on here.