Hi, MariaAlive! I also see a naturopath oncologist and an MPN heme doc. My PCP is a functional medicine doc, so all 3 work together and are in agreement on my care.
72 y/o female, ET wJAK2 for 2 years holding in the high 600s only taking 81 mg aspirin, no HU.
I’ve been on 4-hour time release Resveratrol by Reserveage for probably close to 10 years now.
They’ve said not to use a cheaper brand because of fillers. Also on quercetin and curcumin, Vit D3 w/K2, Vit C, and a B-complex w/Biotin.
Work w/your Docs, talk about your average diet and exercise, and how often you are outside getting fresh air and sunshine. I’m in MI where skies are grey all winter long. Without supplemental Vit D, my levels easily fall below 35. To stay close to 80, I need to take 10,000 IU/day. But here’s the thing, work with your Docs: If I go to Florida for weeks at a time and I’m outdoors every day I stop taking the vitamin D or my levels can approach 100 or more. Delicate balance!
It takes a while to figure it all out. Supplements work slowly, so be patient with your Docs and yourself. This is something we LIVE with. It’s going to be ok!
Blessings for a healthy new year!
Sherry
Hi Sherry, hope all is well. I am currently only on Aspirin. My hemo diagnosed the Jak2 confirmed bmb. I have now left her and am seeing an MPN specialist at sloan. he is conducting his own tests but upon our first meeting he wants me on HU. I told him we will discuss on our 2nd meeting after having all of the test results. I asked him about vitamins and he was clueless. i am a big believer. been taking vitamins since my 20's im 59. I also have vitiligo (24) and hashimotos (48). all under control. Light therpay for vitiligo and synthroid for thyroid. I ask the doc about any other meds since the HU is an issue for skin. I need to continue my light therapy. he told me hu is the gold standard. I'm honestly in great shape, exercise eat well don't smoke anymore and occasionally a glass of wine. My hemo scared the heck out of me since im on aspirin therapy and took me off my K2 and vit C and told me not to drink. my numbers are in the mid to high 600's. My PCP said i can take the K2 with my D. Anyway, sorry for the long story but how did you find a naturopath oncologist? I'm in NJ. Thank you so much.