Complex regional pain syndrome (CRPS) and feeling blank

Posted by paulieoneill4979 @paulieoneill4979, Aug 20, 2022

Hey everyone was diagnosed with crps in April 2022 after a trimalleolar ankle fracture and distal radius fracture Jan 2 2022 I have been taking gabapentin 1800mg a day and I feel like it's done nothing this condition is absolutely the worst thing I've ever experienced I cant sleep I don't have any interest in anything most days and the rare day I have a but of energy it's gets zapped pretty quick I have burning in both legs lower back and whole arm to neck scheduled for nerve abalation and epidural in a few weeks I just want to see if anyone here is going through this o am so lost right now

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@bebold

Sugar, white flour, look up anti-inflammatory diet.

When you have CRPS, ypu have increased cytokines, bradykines in your blood. They are pro-flammatory T cells and there are certain foods known to increase the level of them in your blood.

They are actually the same things that got elated when you had covid. It's why covid was so very painful for many people. Crps is an autoimmune disorder. Learning how adrenaline, cortisone, thyroid hormone, etc are all involved is a complex study I'll leave to the scientists bit we all know everything in our bodies works (or doesn't) together and minute changes in one, affects all. You can find much about it online.

I believe in science. I have been dieting and eating no sugar (except when I choose to have some dark chocolate. And no pasta, very little bread etc.

I thought going off sugar and flour would be a nightmare. It has not been as I'm committed. After a while tangerines, grapes, etc all taste much sweeter and sugar cravings can be fulfilled with sweet fruit.

Its why a good antiinflammatory is many times taken with some pain relief. Its not propaganda. Its proven fact.

I also want to remind people that because of medication doesn't work for you, doesn't mean you should start telling other people not to take it ok? In fact some people rule out a medication after trying it once when there are many manufacturers and they're not all created equal.

Like the medication tramadol. I have taken it from a few different manufacturers some are like water. Zero help. Some help.

I'm going to suggest if medication doesn't work for you, look it up online and find out what people are saying about what manufacturers work in which don't, then get that manufacturer and see if that is better.

With Lamictal, Unichem is the most consistent manufacturer. Lamictal is also used for seizures. Different manufacturers of Lamictal can lead to more seizure activity or less. Not subjective. Seizure activity os a very objective find.

Find a pharmacy that doesn't give you a different manufacturer every month. That just means that they give you that month whatever they were able to buy cheapest from their middle man. I'm on high blood pressure medication from long covid and when I stayed on the same drug but went to a different Pharmacy with a different manufacturer my blood pressure went through the roof. Same dose, same drug. 220/110. My blood pressure had been stable on this one particular brand/manufacturer. There's a really good book out about the dangers of generic medication but brand name is all fairly expensive. If you have the financial ability the most important thing I can say to you is take all brand name medication if you can.

There's a lot to be read about generic medication but there's also a lot to be read about sugar, flour, and etc.
Choose science. Look up cytokines/ bradykines. Cytokine storms are what killed many (million?) people during covid.

Comments that just say "propaganda" are less than helpful.
Thanks for reading.

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I don't take synthetic drugs or opiods period no matter the manufacturer. I take THC and CBD gummies for inflammation they work better than nsaids, what id like to do is the neridronate infusions. I have to find who does them in the States without ketamine.

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I've had over 8 years of Suffering without any help from Physicians whose only suggestion is to get a Spinal Implant which has further damaged over 2 million patients since 2008. And from 2008 to 2018 over 83,000 deaths from Spinal Column Implants. Forget Narcotic Pain medications as doctors can lose their License and go to jail just for prescribing, even though over 70 percent of CRPS Patients successfully utilise Opioids to battle chronic/intractable/high impact chronic pain with cognitive damage. Not one Pain Clinic or Physicians has even tried me on Opioids in 8 years. Not ONE legitimate study has Ever Been Done on the Long Term Effects of over one year, of using Opioids for Chronic Pain. Look it up... Not one study of over one year to study the effects of Opioids on Pain Patients. The CDC is useless and I would only trust Mayo Clinic or the Cleveland Clinic to treat CRPS Patients, except, my Anthem Medicare can't get me there and I am too poor to pay for CRPS evaluations, counseling, treatments, travel and clinical trials.
You want the Truth about CRPS? Can You handle the Truth? I have spent the last 8 years studying CRPS Type 2 and now I am in Stage 4. I'm here to help...
Craig

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