How many of you improved your osteoporosis without drug intervention?

Posted by deblb @deblb, Nov 28 8:13pm

I was just diagnosed with osteoporosis and had my first Prolia injection about a month ago. I have never had any health issues, I am 65 and have never been on medication. I was blind sided and of course didn't ask questions of my doctor and had no tests done other than the bone density scan only because it was recommended at my age. I am getting the Bone density report from my doctor, a GP, next week and I want to know what I should be asking her, should I request a referral to an endocrinologist?
I also want to know if anyone has stopped Prolia after 1 injection and is there a risk of rebound fractures? How many of you improved bone density with natural approaches. I am reading that bone density increases with Prolia because the 'dead' bone is not removed and new bone is deposited onto the old bone, not really improving bone quality. There is just so much information out there and hard to know what is fake and what is real.
Thanks for your help

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@glnamcgr

PS: Sorry, Mary, the other support group is healthunlocked, not unlimited.

And, if it gives you any encouragement, I’m 78 years old and I’m still very, very active. I play pickleball several times a week, go to the gym, walk my dog, do yoga, snowshoe, and cross country ski. I do believe you can improve your bone strength through diet and exercise. And maybe supplements, but make sure you have blood tests to see if you are deficient in any particular area. Supplements can be very dangerous. Calcium especially! Bond strength is much more important when you consider fracture risk, than bone density —in my opinion. Bottom line is: just don’t fall!

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Great advice! I know most people run to calcium, but I've been told that while it increases bone density, I've been told the new bone is very fragile and still susceptible to fractures. I'm not familiar with the term bond strength, but will read up on it.

You sound like an amazing person - wishing you many more years of active fun!

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@deblb

Thank you. They use to do the test as a standard blood test routine in Canada but they no longer do. I can request and pay for it.

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In British Columbia, BC pharma pays for it if it's ordered by a specialist. Patient pays if it's ordered by a GP.

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@fmd2015

Thank you for sharing. I, too, have just received a bad report. I don't know what my T- score is but I will find out. Will check back here to see your comments and disclose more info about my case. Thank you again for sharing.

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I found out after I feel 5 year's ago and crushed my L2 and had a dexa scan and my therapist score was -3.7
I take bone health capsules. It's not gotten worse. I just don't want shots or once a month pills 😩.

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@blessedsista24

I found out after I feel 5 year's ago and crushed my L2 and had a dexa scan and my therapist score was -3.7
I take bone health capsules. It's not gotten worse. I just don't want shots or once a month pills 😩.

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@blessedsista24 I had three lumbar fractures from one unwise movement with a -3.7 DEXA score. It has been painful, disabling and affected my GI, lungs and heart function. Just sharing my experience. Tymlos brought me from severe to borderline in one year.

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I have been doing quite a bit of research on bone density and how to improve it. I was diagnosed with osteoporosis about 2 years ago, -2.5 score, which is borderline. I have broken many bones over my life, most having nothing to do with osteoporosis, the first being fractured tibia and fibula when I was 13 years old, and a fractured fibula, same leg, a year later. I am 74 now. The last fracture was about two years ago, while hitching up a camper trailer to my car, I felt a pop, and oh the pain. I had fractured L4, which I am pretty sure is osteoporosis related. I've started on Fosamax, and I hate it. It gives me the worst constipation of my life.

From my research, I've learned that the absolute best way to strengthen bones is exercise, particularly strength training, weight lifting, etc. But now, as of this past spring, I've been diagnosed with breast cancer, Stage 1, Grade 1, hormone positive, and HER2 negative. It was a tiny 6mm tumor found on a routine screening mammogram, and for which I felt nothing. I've had a lumpectomy and radiation, and I am now considered cured, but on an aromatase inhibitor, Letrozole, for the next five years to prevent a recurrence. I have none of the lousy side effects that many women experience on letrozole, except that it will invariably result in bone loss. I need that like a hole in the head.

My point for writing this is I am planning to take the fosomax for a while, as a kickstarter to bone development, but using bone strengthening exercises as my main modality for bone strengthening. In about a year, I plan to completely go off the fosamax. I have read that using fosomax as a kickstarter is a good strategy, as long as you follow through with a consistent exercise program. That's my plan. Hope this helps.

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@glnamcgr

PS: Sorry, Mary, the other support group is healthunlocked, not unlimited.

And, if it gives you any encouragement, I’m 78 years old and I’m still very, very active. I play pickleball several times a week, go to the gym, walk my dog, do yoga, snowshoe, and cross country ski. I do believe you can improve your bone strength through diet and exercise. And maybe supplements, but make sure you have blood tests to see if you are deficient in any particular area. Supplements can be very dangerous. Calcium especially! Bond strength is much more important when you consider fracture risk, than bone density —in my opinion. Bottom line is: just don’t fall!

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How is calcium dangerous?? Thanks

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@glnamcgr

hi Mary

It has been my experience that there are no general practitioners, rheumatologists or endocrinologists who will recommend anything other than lifelong drugs for osteoporosis. I have had osteoporosis for 25 years and I have done much research on osteoporosis, bone drugs, and their side effects. I will never ever take a bone drug. For me, the benefits do not outweigh the risks. I have read several books on this topic, watch many videos, read several clinical trials to help me make this decision. I believe one of the best sources for information are support groups, such as this one. Another great support group is called HealthUnLimited. I just finished a book, which you can download, called Osteoporosis Reversal Secrets by Igor Klibanov. I found it a very good resource.

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Merci pour votre commentaire, expérience et vos recommandations.
Je vais chercher le livre.

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@dabell1004

I have been doing quite a bit of research on bone density and how to improve it. I was diagnosed with osteoporosis about 2 years ago, -2.5 score, which is borderline. I have broken many bones over my life, most having nothing to do with osteoporosis, the first being fractured tibia and fibula when I was 13 years old, and a fractured fibula, same leg, a year later. I am 74 now. The last fracture was about two years ago, while hitching up a camper trailer to my car, I felt a pop, and oh the pain. I had fractured L4, which I am pretty sure is osteoporosis related. I've started on Fosamax, and I hate it. It gives me the worst constipation of my life.

From my research, I've learned that the absolute best way to strengthen bones is exercise, particularly strength training, weight lifting, etc. But now, as of this past spring, I've been diagnosed with breast cancer, Stage 1, Grade 1, hormone positive, and HER2 negative. It was a tiny 6mm tumor found on a routine screening mammogram, and for which I felt nothing. I've had a lumpectomy and radiation, and I am now considered cured, but on an aromatase inhibitor, Letrozole, for the next five years to prevent a recurrence. I have none of the lousy side effects that many women experience on letrozole, except that it will invariably result in bone loss. I need that like a hole in the head.

My point for writing this is I am planning to take the fosomax for a while, as a kickstarter to bone development, but using bone strengthening exercises as my main modality for bone strengthening. In about a year, I plan to completely go off the fosamax. I have read that using fosomax as a kickstarter is a good strategy, as long as you follow through with a consistent exercise program. That's my plan. Hope this helps.

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Merci pour votre partage, j'espère que tout ira mieux dans les mois à venir.

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@jaybee51

How is calcium dangerous?? Thanks

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I’m certainly no expert, but i am fundamentally sceptical of most supplements. First of all, they are not regulated by the FDA; not that FDA approval makes drugs safe! Secondly, it is very difficult to know what amount of a supplement we need and overdosing can be very dangerous. Thirdly, we need to get our vitamins and minerals from food as they are much easier to absorb.

Regarding calcium, some studies have shown that taking calcium supplements is linked to kidney stones and cardiovascular disease.
The connection between calcium and cardiovascular disease is plausible. Calcium deposits are part of artery-clogging plaque. They also contribute to stiffening of the arteries and can interfere w the functioning of heart valves.

Given the uncertainty about the balance of benefits and risks of calcium supplements, it's probably best to get the calcium you need from dietary sources.

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@dabell1004

I have been doing quite a bit of research on bone density and how to improve it. I was diagnosed with osteoporosis about 2 years ago, -2.5 score, which is borderline. I have broken many bones over my life, most having nothing to do with osteoporosis, the first being fractured tibia and fibula when I was 13 years old, and a fractured fibula, same leg, a year later. I am 74 now. The last fracture was about two years ago, while hitching up a camper trailer to my car, I felt a pop, and oh the pain. I had fractured L4, which I am pretty sure is osteoporosis related. I've started on Fosamax, and I hate it. It gives me the worst constipation of my life.

From my research, I've learned that the absolute best way to strengthen bones is exercise, particularly strength training, weight lifting, etc. But now, as of this past spring, I've been diagnosed with breast cancer, Stage 1, Grade 1, hormone positive, and HER2 negative. It was a tiny 6mm tumor found on a routine screening mammogram, and for which I felt nothing. I've had a lumpectomy and radiation, and I am now considered cured, but on an aromatase inhibitor, Letrozole, for the next five years to prevent a recurrence. I have none of the lousy side effects that many women experience on letrozole, except that it will invariably result in bone loss. I need that like a hole in the head.

My point for writing this is I am planning to take the fosomax for a while, as a kickstarter to bone development, but using bone strengthening exercises as my main modality for bone strengthening. In about a year, I plan to completely go off the fosamax. I have read that using fosomax as a kickstarter is a good strategy, as long as you follow through with a consistent exercise program. That's my plan. Hope this helps.

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@dabell1004 I will just share my experience and what I was told along the way. I struggled to get on bone meds for years (starting in 2006) and had a grade 3 ER+PR+ HER2- breast cancer in 2015. I did letrozole for 5 years, and my endo did not want to prescribe Reclast due to fears about my afib.

I lost a lot of bone density and fractured 3 lumbar vertebrae and possibly one thoracic. I had previous 3 thoracic fractures in 2006 from a traumatic fall.

Reclast and Zometa are both zoledronic acid and are supposed to have protective effects in terms of cancer spread, but your cancer was tiny and grade 1.

I ended up doing Tymlos and got my bone density back to borderline from severe.

IF you had a fracture you might have benefited from Tymlos, Forteo or Evenity and with a fracture insurance would have covered it. But now that you have cancer, bisphosphonates are the usual course. I hope that Fosamax is strong enough for this situation- let us know! And I hope you can tolerate it for some of the time you are on an AI.

More later!

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