← Return to My Experience on Evenity for Treating Osteoporosis

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@lamay

My story was very similar to yours. Diagnosed at 57 (had to convince doc to prescribe dexa), referred to an endocrinologist who said I needed Reclast. I also am very susceptible to drug side effects. Doc didn't really discuss any other options, I was sleep deprived and freaked out and it takes me awhile to process information so I didn't really know what questions to ask. After some grief and a lot of reading I decided to take a step back. Changed diet, gained weight, started weight lifting and balance training. Took a year of talking to various doctors until I found a specialist and decided on HRT instead of osteo meds. I was a bit worried about that too as I am 8 years past menopause. But I feel a lot better, wish someone had told me about hormones earlier. Next dexa in March, we'll see. Good luck to you!

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Replies to "My story was very similar to yours. Diagnosed at 57 (had to convince doc to prescribe..."

Thank you so much for responding! We sound very similar. I am a delayed processor as well which is so difficult in a medical setting. I didn't realize until I had gotten home that my doctor had muttered something under her breath about a consultation at an osteoporosis clinic, but that they would say the same thing (reclast).

Do you mind if I ask what your t-scores were?

I would love to hear what your dexa scores are in March!

What really has me a bit irritated at the moment is that when I asked about trying to make lifestyle changes, she said that if I went that route, the soonest I could get another Dexa would be two years from now and what if I got way worse in that time. And yet, if I get reclast, then I get dexa a year later. It's all down to the insurance company apparently. But the other very real problem is it takes nearly a full year to even get an appointment once your doctor puts the order in. Side bar, but by the time I get my colonoscopy in June, I will have been waiting almost TWO years from the time my doctor put the order in. (OK, rant over)

I have rescheduled my infusion from January 3 to January 30th to allow me to have another appointment with my primary to ask about the osteoporosis clinic and to see my dentist to make sure my teeth are OK. Depending on what happens at those two appointments I may push it out again.

I feel ridiculous even typing this, but the problem I'm facing currently is finding a vitamin D that I tolerate. Years ago I took prescription vitamin D and had absolutely no problem with it. I couldn't even tell I was taking anything. So why I'm having problems with over the counter vitamin D has me flummoxed. It's hard finding supplements when you are a celiac. So many are contaminated with gluten. Anyway, I stopped trying over the holidays because didn't want upset stomach or diahrea. My next attempt will be a vegan formulation.