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Am I alone with so many maladies?
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (12)Comment receiving replies
@my44 One thing that really keeps me in line is the fact I am a complicated case. My oncologist and nephrologist are in good communication to balance out my treatments and medications. The plan we use may not be "normal" but it works for me. And the biggest takeaway is that my team has an opportunity to experiment and trial different ways to look at things, and combinations. I am willing to be their guinea pig, and they get to have more tools in their toolbox for future patients.
Today we woke up to a lot of overnight rain.
Ginger
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Hi, @gingerw.
All my adult life, my health and healthcare have been summed up in that one word: complicated. Therefore, interdisciplinary communication between different specialists is so important. One thing I've noticed since my kidney transplant is that all other specialists are hypersensitive to that fact and are extra careful and cautious because they don't want to do anything to hurt or jeopardize my kidney health. Whereas they used to immediately recommend a treatment or medication, now they take it a little slower and want to confirm that what they want to do is not a contraindication to my kidney protocols. And that's okay with me.
I do like your attitude about being their guinea pig. That's selfless. And I'm sure that others before us were guinea pigs that resulted in some of the tools that our docs are using for us today.
We had a rainy night, too. But it wasn't much.
Happy Holidays!