Denise, my gosh, gurl… You’re under unimaginable stress taking care of your husband who doesn’t seem to care about his health at all anymore. I guess from his perspective, he’s pretty much convinced this is the end of the line so he’s just going to take the drugs, smoke his multiple packs of cigarettes and the heck with everything else. As you suggested, that combination of strong narcotics, Xanax, caffeine and nicotine are all impacting his cognitive ability.
You are between a rock and a hard spot, my dear. I hope you’re able to sit in with the Palliative care doctor visit today. Are you able to have a list of questions to ask for yourself? That doctor needs to know about the extra meds your husband is taking, his declining behavioral skills with simple tasks such as making coffee, and such. Don’t hesitate to ask for direction on how to get the best help for both your husband AND you!
I hope you are able to take decompression breaks. I’m more worried about you than your husband, quite frankly. You’re bearing a load of stress trying to care for your partner who has basically given up. I’m a hugger and there’s nothing I want more right now than to reach through this computer and give you a bear hug! You need support.
Do you have friends or family nearby to lend a hand or personally be there for moral support?
Thank you for your understanding and kind words. I do have family but they are about 30 minutes away which isn't that far but they all still work. My mother lives on my property but she is 92 and still fairly healthy but I don't want to put this on her. We did not get to talk to the palliative doctor as no one called at 11:45. I called and the woman said she did not have an appt for him. She said it was for January 24. I thought I must be losing it also, but I found the card and it definitely said December 24, 2024. Then she said it had been cancelled and I told her we were never notified. The palliative care doctors are the ones that prescribed these pills for my husband. 80 mg oxycodone which I give him, 20mg of xtampa (oxycontin er9) and xanax two a day. Tonight I have been really sad. I am not really feeling this holiday and really did not want to do my small christmas dinner with some family, but I was worried that this could be his last christmas. I am doing it for him. He went to bed this afternoon at 4 and is still sleeping. He never sleeps well, so I don't want to wake him up. I just heard him cough so I know at least he is still alive. Sorry that was not very nice to say. Thanks again and have a very Merry Christmas!