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@loribmt

Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health and have two great doctors on your team! I hope you’ll find that your new friends in Connect are part of your care team as well! You jumped right into the perfect support group with other members who the same diagnosis of Essential Thrombocythemia, a condition where your body is producing too many platelets.

There’s no shortage of good conversations in the forum surrounding ET, side effects of the condition, the medications taken, and possible supplementation. I found a couple of discussions you might want to join. (More can be found by typing ET, Essential Thrombocythemia, JAK2 mutations, Hydroxyurea, etc., in the search box at the top of the page.)

Here are a few to get you started:

~What are most common side effects when starting HU (Hydroxyurea)?
https://connect.mayoclinic.org/discussion/hu-side-effects/
~Essential Thrombocythemia: Looking for information and support
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
~Essential Thrombocythemia (ET): foods, diet, nutrition?
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-et-foods-diet-nutrition/
One note I wanted to mention is that there is some concern that products containing turmeric or curcumin may affect platelet function and clotting. This can potentially increase the risk of bleeding when combined with medications that have blood thinning effects such as Eliquis. You may want to check with your care team before continuing on with the curcumin, resveratrol or any other supplements that may affect clotting or interfere with your current medications.

Has your naturopathic oncologist prescribed the Curcumin and resveratrol?

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Replies to "Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health..."

Thank you for all of this great information. Yes both docs, and also the cardiologist are aware of the supplements. They are doing weekly blood counts to make sure all is helping. Yes the naturopathic oncologist has prescribed the curcumin and the quercetin. He is suggesting the resveretrol and well decide that next week. So much to think about. 🙏🏼