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Am I alone with so many maladies?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (12)

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@gingerw

@thefemur Welcome to Mayo Clinic Connect! Thanks to @sueinmn for tagging me here.

Like you, I have been handed [more than!] my fair share of things to handle and juggle. Not long after I read your post this morning, I was presented with a quote I had heard long ago. "Creator hands the hardest struggles to the mightiest of warriors." Yep, true words from my perspective!

Right now, my biggest hurdle is acquiring dialysis fluids that work for me, since Hurricane Helene destroyed a major supplier of these and other critical fluids used across the medical fields. I am also an active cancer patient in treatment, and struggling to keep everything as status quo as possible. Impossible? No. Challenging? Definitely!

What has worked for me is maintaining a sense of humor, advocating for myself, being mindful and respectful towards everyone I meet involved in my medical care. Taking time to research and offer possible solutions as necessary, not being afraid to take an unpopular stand. Are there days I want to just lay in bed, and pull the covers over my head? Yes, but the cats wouldn't let me do that! Being able to be of service to others, in some way/shape/form also helps me get out of my own way, and focus outside of myself.

According to my medical team, I am a complicated case. Blood cancer, daily dialysis for an ultrarare kidney disease, etc. But it is a challenge I have accepted.
Ginger

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Replies to "@thefemur Welcome to Mayo Clinic Connect! Thanks to @sueinmn for tagging me here. Like you, I..."

Ginger, I love your reply. My daughter has been struggling with health and job issues since Covid, and still steps up to help others. Today I was asking if she would be available tomorrow at 10:30am to wrangle Littles decorating cookies. Her response - "I might not want to be but Brina (her 80 lb unofficial emotional support dog) will be standing on the bed with her nose on mine." You and she and many members here are my heroes - you keep me going when I just want to whine and huddle under my quilt!