Interesting case of new lesions, pain, but decreasing CA19-9

Posted by marienewland @mnewland99, 1 day ago

Yesterday I went to ER with intense and acute pain in my right side. After CT&US it was found that my previous lesion in liver of 0.9cm which received SBRT radiation in October was now 4x5.7 cm and presented itself as “vague” or “subtle” inferior hepatic lesion but couldn’t be distinguished on US. I had a US because a CT showed possible edema in gallbladder. Also, a new 2.4cm lesion occurred next to the existing lesion. I just received news last Friday that my CA19-9 had decreased from 16 2 weeks ago to 8. This is weird as my tumor marker has been a very good indicator for me in the past. My monocytes yesterday were quite elevated from 2 weeks ago. My oncologist has already gone out of country for holidays and won’t be back for a few weeks. I plan to get a PET scan to verify any new cancerous activity. Also, I might be taking chemo this week and adding cisplatin back into my chemo mix if PET scan is positive. Does this scenario make sense to anyone? My husband thinks maybe the radiation I received in October may have te ei ed scarring and that’s what the scan shows as subtle or vague. But the intense doesn’t in my mind validate his guess.

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Intense pain I meant to write.

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Radiation to a new tumour for my sister-in-law at her stomach caused some inflammation and infection and therefore pain. If that happened to you, your markers should have shot up. Do go get a PET scan done quickly. I hope ER gave you something for the pain.

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@joiedevivre

Radiation to a new tumour for my sister-in-law at her stomach caused some inflammation and infection and therefore pain. If that happened to you, your markers should have shot up. Do go get a PET scan done quickly. I hope ER gave you something for the pain.

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Yes I did get some hydrocodone-acetaminophen for pain that I will use sparingly as I don’t like to take medication like that unless I don’t have a choice. My radiation was in October, and my pain just started so I’m not sure if it’s related. Thank you for your advice and I hope your sister in law is doing ok now.

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My guess is that an MRI will be ordered for the liver and gall bladder .

MRI seems to be the confirming test for that area. I am in a clinical trial but scans are showing conflicting impressions. I attribute this, somewhat, to different radiologists reading and writing their impressions. My “home surgeon” has only one radiologist interpreting scans he orders. Difficult week to have alarming results.

Could it be your gallbladder? Right side pain…

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@gamaryanne

My guess is that an MRI will be ordered for the liver and gall bladder .

MRI seems to be the confirming test for that area. I am in a clinical trial but scans are showing conflicting impressions. I attribute this, somewhat, to different radiologists reading and writing their impressions. My “home surgeon” has only one radiologist interpreting scans he orders. Difficult week to have alarming results.

Could it be your gallbladder? Right side pain…

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My husband’s surgeon and oncologist can read the same PET scan differently. And the radiologists (a good number work in the hospital where we get the PET scans done) can each find different ‘bits’ and shadows in my husband’s body. Fortunately none are bright which would have suggested active cancer cells. All I can say is our cancer journey is all the more difficult because of this.

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@gamaryanne

My guess is that an MRI will be ordered for the liver and gall bladder .

MRI seems to be the confirming test for that area. I am in a clinical trial but scans are showing conflicting impressions. I attribute this, somewhat, to different radiologists reading and writing their impressions. My “home surgeon” has only one radiologist interpreting scans he orders. Difficult week to have alarming results.

Could it be your gallbladder? Right side pain…

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They saw a “giant” 4x5.7 lesion (but this must be a tumor?) and a new 2.5cmlesion next to it on the liver and those can cause pain?I got a PET scan today but won’t get results until Thursday and my oncologist is in India until mid January.0 it’s bad because I’m feeling very nauseous and weak and in pain and I’m trying not to let my kids know how bad it is though they are there are new lesions and that we don’t know their origin yet. I wish you the best on your trial and have a very Merry Christmas!

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