1. < Ear, Nose & Throat (ENT)

Any one with Ménière Disease ?

Posted by mari42 @mari42, Dec 8, 2024

I have been diagnosed with Ménière disease 2 years ago and experienced this year drop attacks. Am interested in hearing what treatment has been prescribed and if any one has gone to nutritionists, osteopath, acupuncturist ?

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TMM | @tmragain | Dec 20, 2024

My surgeon is questioning if I also am developing Menieres Disease. You may have to search Menieres in the search box to find some helpful posts. There are also some facebook support groups as well. Good luck.

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1 reply
mari42 | @mari42 | Dec 21, 2024
In reply to @tmragain "My surgeon is questioning if I also am developing Menieres Disease. You may have to search..." + (show)
@tmragain

My surgeon is questioning if I also am developing Menieres Disease. You may have to search Menieres in the search box to find some helpful posts. There are also some facebook support groups as well. Good luck.

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Why is it your surgeon who is wondering if you are developing Ménière ? Usually it is an ENT specialist.
Up to now I have not seen any support group for Ménière anywhere.

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1 reply
TMM | @tmragain | Dec 23, 2024

My surgeon is an otolaryngologist.

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1 reply
TMM | @tmragain | Dec 23, 2024
In reply to @mari42 "Why is it your surgeon who is wondering if you are developing Ménière ? Usually it..." + (show)
@mari42

Why is it your surgeon who is wondering if you are developing Ménière ? Usually it is an ENT specialist.
Up to now I have not seen any support group for Ménière anywhere.

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There are several support groups on Facebook if you search and request to join.

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1 reply
mari42 | @mari42 | Dec 23, 2024
In reply to @tmragain "There are several support groups on Facebook if you search and request to join." + (show)
@tmragain

There are several support groups on Facebook if you search and request to join.

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Thank you but I am not on Facebook and have organised a support group in person. To enlarge my understanding of Ménière’s disease and its various treatments, I would like to talk to people who live in different places and countries. I haven’t heard from anyone yet. I wonder why ?

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mari42 | @mari42 | Dec 23, 2024
In reply to @tmragain "My surgeon is an otolaryngologist." + (show)
@tmragain

My surgeon is an otolaryngologist.

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Thank you, that makes sense. Are you considering an operation of the inner
ear ?

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1 reply
TMM | @tmragain | Dec 23, 2024
In reply to @mari42 "Thank you, that makes sense. Are you considering an operation of the inner ear ?" + (show)
@mari42

Thank you, that makes sense. Are you considering an operation of the inner
ear ?

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Not at this time as I’ve already had 3 ear surgeries on the left ear this year alone. Things have calmed down over the last week so I’m keeping my fingers crossed! 🤞

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