I know what you mean, ‘being all Greek to me’ when looking at lab/procedure results. It really is like learning a new language. I got an education by emersion with my AML/BMT transplant odyssey almost 6 years ago and have gotten pretty proficient with reading results over the years 😅
The information you posted is basically detailing the blood work, testing and procedure you had done to confirm your diagnosis, including chromosome test to check for mutations. But I don’t see an analysis of the results. Those would be good questions to ask your doctor at your next appointment. Though, it sounds like he’s not very responsive to your questions and a little guarded with having you research information about your condition or even telling your family.

It’s never a bad idea to get a second opinion. If you’d like to request an appointment at Mayo, here is a link to the site: http://mayocl.in/1mtmR63

Click the link and follow the prompts as a new patient. A doctor’s referral isn’t necessary.

I’m admittedly a little biased, but the hematology department at Mayo-Rochester is outstanding. But if that isn’t the campus of choice, there are also campuses in
Phoenix, AZ and Jacksonville FL, both equally as dedicated to caring for their patients.

You have time to make decisions. But I understand that you’d like to know more about your questions and not getting many details from your current doctor. Is there an opportunity to request another consult with him?