Stop taking steroids

Posted by anncoco57 @anncoco57, Dec 21, 2024

Hi I’ve been taking steroids for 6 months now and have come down from 15mg to 7.5mg . The pain levels have not got worse and are bearable with painkillers . The problem is that I put do much weight on its impacting my health .

I’m just wondering what happens if you just stop taking steroids rather than tapering

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Profile picture for art43 @art43

anncoco57:
Please see your doc. Going from 7.5 to 0 in 3 months is almost certainly going to be problematic, and potentially dangerous.

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Sorry to hear about your additional back pain.
I agree. You must taper very slowly. I went from 10 mg to 1 mg over 8 months. Reduce 1mg every 3 weeks, and if you get more pain go back up 1 mg for a couple more weeks. It’s a slow process. You are trying to keep the inflammation and pain down while reducing the Prednisone. Good luck patience is needed.

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Thanks . I’ve been on 7.5 for three weeks . I was told reduce by 1mg every three weeks

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Profile picture for vgen @vgen

I find the stress from planning an event or just doing too much flares my PMR. Try 1mg, it may take the edge off. If not go up another mg. I am down to 1 mg and it keeps me moving, this was advice from my rheumatologist. I still have pain and stiffness but it’s not keeping me from moving. Unfortunately, Prednisone is the go to medication to bring down the inflammation. And i have osteoporosis a well and it’s a constant worry i am getting rid of inflammation but destroying my bones.

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I ended up taking 2mgs and it helped. I still had pain but it was bearable. I wrote my doctor and of course, she is out of the office. Supposedly someone else will review my message, Thanks again. Merry Christmas!

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Profile picture for art43 @art43

anncoco57:
Please see your doc. Going from 7.5 to 0 in 3 months is almost certainly going to be problematic, and potentially dangerous.

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I agree, slowly tapering is so important. It took me two years to get to 2 mg, and another year to get to 0. I still take 1 mg. as needed.
My rheumatologist told me I may need to take 2mg a day for the next 20-30 years. He believes that would be safer than taking OTC medication.

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Profile picture for besmith57 @besmith57

I ended up taking 2mgs and it helped. I still had pain but it was bearable. I wrote my doctor and of course, she is out of the office. Supposedly someone else will review my message, Thanks again. Merry Christmas!

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Great news. I know this up and down is tough but at least this is one condition that is not fatal and can be managed. Good luck
Merry Christmas and/ or happy holidays.

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Profile picture for jenbillig @jenbillig

Great news. I know this up and down is tough but at least this is one condition that is not fatal and can be managed. Good luck
Merry Christmas and/ or happy holidays.

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Thank you! Merry Christmas to you too! I didn't take any yesterday, but I sure will today. Please enjoy your holidays!

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Profile picture for michael826 @michael826

I agree, slowly tapering is so important. It took me two years to get to 2 mg, and another year to get to 0. I still take 1 mg. as needed.
My rheumatologist told me I may need to take 2mg a day for the next 20-30 years. He believes that would be safer than taking OTC medication.

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I'm curious as to why your doctor thinks prednisone is safer than OTC pain medication? I would think the side effects would argue against that.

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Profile picture for 54pontiac @54pontiac

I'm curious as to why your doctor thinks prednisone is safer than OTC pain medication? I would think the side effects would argue against that.

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Remember this is an auto immune system condition. I believe prednisone addresses that whereas a pain killer just does that and no more it masques the pain.
I may be wrong so check with your Dr.

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Profile picture for 54pontiac @54pontiac

I'm curious as to why your doctor thinks prednisone is safer than OTC pain medication? I would think the side effects would argue against that.

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Please read about the side effects of IBUprofen..... it destroys red blood cells faster than your body can make them. I was take Ibuprofen for several weeks for a knww problem and I became anemic. Check out the other pain killers as well. They are all harmful.

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Profile picture for aisp3b @aisp3b

Please read about the side effects of IBUprofen..... it destroys red blood cells faster than your body can make them. I was take Ibuprofen for several weeks for a knww problem and I became anemic. Check out the other pain killers as well. They are all harmful.

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I did not know that. However, I did not notice side effects from ibuprofen and it did little to affect my PMR symptoms. Prednisone had noticeable effects on my bones and skin and hair, but knocked out the PMR like a champ. I do not want to stay on it any longer than necessary.

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