I understand the ‘not going down a rabbit hole’ of mis-information that we can find on the internet. But I also feel that knowledge is power and if you’re in the potential group for progressing to AML, then you definitely want to be proactive. I had AML and you do not want to wait to that point.
You might consider getting a second opinion. Especially if you’re not getting a good vibe from your doctor. We don’t have to be best friends with our doctors but we do need to feel that they are concerned and part of our team…and not holding us at arm’s length or being dismissive.

I’m sorry to hear your wife had a stroke. Is she recovering well?