Hello all, I have MCL, in remission and on maintenance every other month. I had a BMT in December of 2023. Still have not recovered fully from that. All my counts (RBC, WBC and platelets) are still abnormal. Last two blood tests show RBC fragments and RBC bite cells. Anyone else seen this?
Hi @ffb1234 I wanted to check in with you to see how your recovery is coming along from your BMT, now that you’ve gotten that first year post transplant out of the way. How have you been feeling? Has your strength and energy returned to ‘normal’?
I know you were concerned about the blood counts being abnormal 6 months into recovery. Did they finally even out?
Hi @ahoang27 You must have a zillion questions about your new diagnosis of MCL (Merkle cell Lymphoma). It can be so helpful being able to speak with others such as, @arbutus@angelu94 and @nhlbob who are experiencing the same condition or have a loved one with the disease.
If you don’t mind sharing, what were the symptoms that led up to your diagnosis? Since this is a relatively new diagnosis, have you begun any treatment yet?
Hi @ffb1234 I wanted to check in with you to see how your recovery is coming along from your BMT, now that you’ve gotten that first year post transplant out of the way. How have you been feeling? Has your strength and energy returned to ‘normal’?
I know you were concerned about the blood counts being abnormal 6 months into recovery. Did they finally even out?
Lori, thank you. That is very kind and thoughtful of you. It has been a year that is for sure. My blood counts are still the same. Saw my BMT doctor last week for my anniversary checkup and she is concerned also. Doing a bunch more tests now. Hopefully we will get this figure out. Again thank you for your caring and kindness.
Lori, thank you. That is very kind and thoughtful of you. It has been a year that is for sure. My blood counts are still the same. Saw my BMT doctor last week for my anniversary checkup and she is concerned also. Doing a bunch more tests now. Hopefully we will get this figure out. Again thank you for your caring and kindness.
As you’re finding out, having a BMT changes everything! We’re given this amazing 2nd chance at life but with it can come some adaptions we’re not used to dealing with for sure!
Personally, I felt the first year was the most challenging. So, happy 1st Re-Birth day and best wishes for a much better year…years…ahead!!
I’d like to invite you to participate in some of our BMT/SCT conversations in the forum! I think you’ll enjoy getting to know some of the other Chimeras…we’re a special lot. Haha.
We share our experiences which can really help to let you know you’re not alone. That we all have little quirks with our newly acquired immune system and we’re here to support each other.
You’ll meet up with some regulars there and some newbies like @katgob who is just a little behind you in her journey.
These two discussions will be a good place to get started:
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Hi @ffb1234 I wanted to check in with you to see how your recovery is coming along from your BMT, now that you’ve gotten that first year post transplant out of the way. How have you been feeling? Has your strength and energy returned to ‘normal’?
I know you were concerned about the blood counts being abnormal 6 months into recovery. Did they finally even out?
Hi @ahoang27 You must have a zillion questions about your new diagnosis of MCL (Merkle cell Lymphoma). It can be so helpful being able to speak with others such as, @arbutus @angelu94 and @nhlbob who are experiencing the same condition or have a loved one with the disease.
If you don’t mind sharing, what were the symptoms that led up to your diagnosis? Since this is a relatively new diagnosis, have you begun any treatment yet?
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1 ReactionLori, thank you. That is very kind and thoughtful of you. It has been a year that is for sure. My blood counts are still the same. Saw my BMT doctor last week for my anniversary checkup and she is concerned also. Doing a bunch more tests now. Hopefully we will get this figure out. Again thank you for your caring and kindness.
As you’re finding out, having a BMT changes everything! We’re given this amazing 2nd chance at life but with it can come some adaptions we’re not used to dealing with for sure!
Personally, I felt the first year was the most challenging. So, happy 1st Re-Birth day and best wishes for a much better year…years…ahead!!
I’d like to invite you to participate in some of our BMT/SCT conversations in the forum! I think you’ll enjoy getting to know some of the other Chimeras…we’re a special lot. Haha.
We share our experiences which can really help to let you know you’re not alone. That we all have little quirks with our newly acquired immune system and we’re here to support each other.
You’ll meet up with some regulars there and some newbies like @katgob who is just a little behind you in her journey.
These two discussions will be a good place to get started:
~My Bone Marrrow Transplant Story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
~Snapshots of hope: Life on the other side of transplant
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
What did you do to celebrate your first BMT anniversary?