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Chronic pain in forehead months after sinus surgery

Ear, Nose & Throat (ENT) | Last Active: 38 minutes ago | Replies (17)
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@peabers

I know your pain! I had a 2 inch olfactory neuroblastoma just removed that required a craniotomy 3 weeks ago! And I asked EVERYONE prior to surgery how to prevent the migraines that I know it’ll trigger, because the biopsy triggered them BAD! I already get Botox for them and am on a preventative, topamax. They all said, the hospital will take care of any pain you’re in. HA! I had to force them to release me TWO DAYS early because I had stronger drugs at home. I have been in he!! For 3 weeks until my neuro (well my ent gave me gabapentin 100mg 3 times a day which I’m surpringly tolerating, then my neuro gave me nortriptyline at night and now has added depakote! I can’t function on all that.
And I’m supposed to start radiation and chemo in a few weeks.

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Replies to "I know your pain! I had a 2 inch olfactory neuroblastoma just removed that required a..."
za5045 | @za5045 | Dec 29, 2024

I just had a Biopsy, a left skull base tumor Sinus Cavity, Contents, Left, left nasal sinus contents
The findings are: Left skull base tumor, endoscopic biopsy: - Intraosseous hemangioma. C. Left middle turbinate, endoscopic resection: - Intraosseous hemangioma.
The doctor told me it's a rare tumor and I am worried about this. I have no symptoms or pain.
Has anyone had or heard about this type of skull-based tumor? Thanks

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wtj46 | @wtj46 | 4 days ago

So sorry to hear this! You had a much more invasive surgery than the balloon sinuplasty that I had. It is very scary that you are now dealing with so much pain and they have loaded you up on heavy duty drugs. Did you have migraine issues prior to the biopsy and surgery? My chronic headache started the day I woke up from surgery and I had no history of migraines or chronic headaches prior to it. It will be 2 years on February 10th since my surgery in 2023. Best wishes in finding some relief. Please add to this discussion if you find any treatment(s) that help(s).

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