← Return to Reclast Infusions: Side-effects & Recovery time

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@dannyandebbie

I find it obvious that a lot of you on here have done some rather extensive research on treatment and options. Honestly, I see some talk about DEXA scan, CTX, Prolia and Reclast infusion dosage. I lack a great deal of knowledge evidently. I have a bone density test preformed and my endocrinologist expresses that I have the onset of osteoporosis and will require Reclast infusions until my count comes within a normal range. Well, I refused any treatment at first. Six months later, I received a call from the endocrinologist asking if I were ready for the infusion, “ Yea, I guess so”. I go and get the infusion which might have taken no more than 10 minutes to have done and I go home. I felt okay the first day or two and then I felt achy all over and could hardly move my right arm without assistance from my left arm. I felt nauseated and still do off and on; I blame that on stress from the pain, not sure what the real reason is. Six months later and the pain in my shoulders might wake me two or three times a night. At first it really bothered me; I try to ignore it now and just go back to sleep. I continue physical therapy as long as my VA insurance will cover; which they expressed will end the first of February. My endocrinologist says I NEED a second infusion in June 2025 and it is important that I follow up with a blood test a week prior. I try to not focus to much on this because it is six months out. However, that time is going to come that I will have to address this issue and I truly fear a repeat of the last infusion and the pain was almost unbearable. I find myself telling myself to cancel the follow up appointment and just go on with my life. I’ve been retired for a little over a year and really have had zero time to try and enjoy a day because of this continuing pain I am experiencing on a daily basis. No one ever told me to stay hydrated or take anything prior to treatment. I have difficulty consuming a lot of fluids because I’ve had bladder cancer 5x over the corse of 13 years and a nerve or something got damaged because every time I have to urinate it burns like a bad UTI. I do understand the importance of staying hydrated. Since the Reclast infusion the burning has increased some, which does not help the desire to consume additional fluids. At one point I did try to increase my fluid intake thinking more fluids might put out the fire, well, that did not work. Most days now I just try to stay busy and try not focus too much on physical ailments until an alarm goes off and I have to deal with it. I honestly do wish you all a lot of luck on your treatments and results. I feel, sometimes just knowing that someone else cares and has or is in the same boat does give a little comfort and maybe that is all I need because I honestly do not want a second infusion so I can continue feeling like I’m on my last days, especially mobility wise! I’m only 68 years old and have way to many things to get done around my home!

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Replies to "I find it obvious that a lot of you on here have done some rather extensive..."

@dannyanddebbie you might want to get a copy of Keith McCormick's book "Great Bones."

You can have IV hydration (I also cannot seem to tolerate drinking much and have kidney disease) and an infusion can last an hour. Given your reaction you could ask about a lower dose ( 1mg or 2 mg).

Many of us get pretty sick with fever after the first infusion but not the second or following ones.

But you have lasting effects. If your bone density shows mild osteoporosis perhaps you can put off treatment (talk to your doctor) or seek an second opinion. You could do a consultation with Keith McCormick (website is osteonaturals.com) after reading relevant parts of his book.

Can you tolerate Fosamax (alendronate)? If you have GERD that can be tough but it is shorter acting and might be safer for you- I really don't know! It is a pill form of bisphosphonate unlike the infused form of Reclast.

I am hoping your new DEXA is at least improved given your suffering. And I hope your doctor or McCormick can come up with either a way to make a bisphosphonate tolerable or help you with alternative paths.

I have been in the osteoporosis world for 19 years and have 7 spinal fractures. That is the only reason I have made the effort to research and ask my doctor questions, and the reason I am on here at all!