Sorry it took your expertise to get you to the right specialist for diagnosis. I have one question. Did they insist on a bone marrow test? PV can be diagnosed solely on your labs and JAK2 positive result. Treatment is the same and I feel like b/c this is so rare they are doing it more for their studies and for the cost. My oncologist said he was fine with me not having the bone marrow test. Unless I incur severe issues, I don’t intend on it.