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I was diagnosed with MGUS in 2015 at age 64. Since that time, my numbers have been stable. I will post later what they are. My question has to do with the above posting mentioning arthritis inflammation. I have pain in multi areas of body but not in the joints. More like sore areas in ligaments and muscles and random tissue areas. Pain in back, hip and SI areas. Anyone else experiencing this?
Replies to "I was diagnosed with MGUS in 2015 at age 64. Since that time, my numbers have..."
Hi!
I agree with checking for an autoimmune disease. I’ve had 4 different drs, including one at Mayo diagnose me with Fibromyalgia. I definitely have the aches you’re describing. But I don’t know that it has anything to do with my MGUS.
My initial finding of MGUS was actually a polyclonal one. Meaning that instead of a monoclonal, one, I had two spikes. One slowly went down over the years & then I was diagnosed with chronic Lyme disease. Related? Not sure. But you can drive yourself crazy trying to understand this glitch we have in our blood. I threw away an entire box of research & decided to do what the drs told me….go live your life & let us take care of this.
Best advice ever! I will always wonder if my bad days, or new pains are the MGUS, but I probably won’t ever have the definitive answers I’ve searched for. Try not to let it overwhelm you, it’s just there for now.
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Technically, MGUS is considered asymptomatic and idiopathic (no known cause, but possible causes or contributors). MGUS can be associated with neuropathy and various autoimmune diseases. It would be good to check with your doctor to see if you have any autoimmune or other diseases/syndromes.