Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for longcolin @longcolin

Yes, I can say.I have had similar thing happen with me.
Stabbing pain when turning in bed on my left side.
Seem to coincide when I began to have gastro.Issues because of my twisted colon.
Constipation.
Is always a situation that you have to deal with all the time.
Just completed a colonoscop and it was a moderately torturous colon.
I wish that there was a way we could untwist the colons!
i'm going to look into it.

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Hi had a colonoscopy it was very painful bcz i have same like you redundant tortus colon with sigmoid loops...my symptoms are very painful gas all over stomach that including stomach skin discomfort..when seating long time and too much gas...also empty stomach more worse..🥲🥲🥲

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Profile picture for researchmaven @researchmaven

Good luck, shawnkthryn. You've got this!

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@researchmaven I used to be able to eat fish & chicken. Then I noticed I wasn't digesting it in my bm. Today I was vomiting orange. Research medical news chart has orange as digestion issue. Now, I've ganged up & am drinking tons of stash hot black licorice tea & zero Gatoorade. I found I can eat hint of lime chips. We've given up many foods but we feel so much healthier knowing what does agree with our internal system. GI 10min appt this Thurs. Asking if I sabotaged my GES & now color vomit. & I have not wavered from bland foods. Won't do fruit blends w seeds. Do seeds get smashed in blender? Had carton egg white sandwich today. It's nutritious on sourdough toast. Thanks again & best to you

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Great post Farmer Smith.
I apply a lot of what you do as well,
But im not brave enough to grind all the seeds up and eat them with prune juice.
Dry prunes bloats me but I will try the concoction w prune juice!
Thanks again

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Profile picture for shawnkthryn @shawnkthryn

@researchmaven I used to be able to eat fish & chicken. Then I noticed I wasn't digesting it in my bm. Today I was vomiting orange. Research medical news chart has orange as digestion issue. Now, I've ganged up & am drinking tons of stash hot black licorice tea & zero Gatoorade. I found I can eat hint of lime chips. We've given up many foods but we feel so much healthier knowing what does agree with our internal system. GI 10min appt this Thurs. Asking if I sabotaged my GES & now color vomit. & I have not wavered from bland foods. Won't do fruit blends w seeds. Do seeds get smashed in blender? Had carton egg white sandwich today. It's nutritious on sourdough toast. Thanks again & best to you

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Well, I cannot eat fish or chicken w/o constipation. I do not vomit. An orange its juice would send me into IBS-C purgatory. Bland foods are my ticket too. For your Q, I would use a seed butter that is smooth. Lots of folks like sunflower butter. It is nutritious and sold in grocery stores by the peanut butter. Glad egg whites are working for you. Best to you, too!

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@longcolin and sylhet1978,

@longcolin
Good luck with more natural things , hopefully you can get just the right combo and back ups for when regularity is not perfect. It is so worth it.

sylhet1978
So sorry to hear that the colonoscopy was so painful. For me, I measured my pain against a near fatal auto accident in 1972 and natural birth of our daughter in 1986. Plus I like to go natural as much as possible. Hope you can find relief with natural things shared on these posting?
Sometimes lifestyles and eating certain foods play a big part for us with redundant colons in our regularity. These need to be altered but there seems to be no magic key. Best of luck, it is so worth having daily Regularity!

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For those of you that take slippery elm…do you take it at night? In the morning? Did it affect you quickly? I want to start taking it but am nervous about how quickly it will work and so when to take it. I’m a teacher so do not always have the opportunity to run to the bathroom. Thank you.

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Profile picture for dedhambeth @dedhambeth

For those of you that take slippery elm…do you take it at night? In the morning? Did it affect you quickly? I want to start taking it but am nervous about how quickly it will work and so when to take it. I’m a teacher so do not always have the opportunity to run to the bathroom. Thank you.

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@dedhambeth - Slippery elm inner bark works best for me with every meal. It can be in homemade food (bread, hot cereal, cocoa, etc.), added to suitable commercial food (instant oatmeal) or dissolved in hot water. I started taking it with my morning meal, then thought about it, and tried using it with every meal (4- or smaller meals a day).

It definitely works better with every meal. I have an incredibly sensitive gut, so 1/8 teaspoon with a meal. When I was taking it once a day in the morning, I took 1/2 teaspoon. If I can't add it to my food, I put in in a hot liquid.

For me, it seems to work by softening and providing slip best for the meal I take it with. So it does make a world of difference for me when I take it with each meal.

(I think there are slipperly elm bark "chunks" (outer and inner bark) that could be steeped normally like any tea. If so, that may be best for a meal in the work environment.)

Since school teachers are on holiday now or soon, it is a good time to experiment to find a dose that works.

Whether it creates an urgent need to toilet, that may depend on the dose. I find that with my optional dose of 1/8 with a meal.

I am currently checking to see if 1/8 a teaspoon with a meal, when it is a six-meal day, is still the right dose. Maybe taking it four or five times a day is my limit, with a sixth 1/8 teaspoon dose too much.

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Profile picture for researchmaven @researchmaven

@dedhambeth - Slippery elm inner bark works best for me with every meal. It can be in homemade food (bread, hot cereal, cocoa, etc.), added to suitable commercial food (instant oatmeal) or dissolved in hot water. I started taking it with my morning meal, then thought about it, and tried using it with every meal (4- or smaller meals a day).

It definitely works better with every meal. I have an incredibly sensitive gut, so 1/8 teaspoon with a meal. When I was taking it once a day in the morning, I took 1/2 teaspoon. If I can't add it to my food, I put in in a hot liquid.

For me, it seems to work by softening and providing slip best for the meal I take it with. So it does make a world of difference for me when I take it with each meal.

(I think there are slipperly elm bark "chunks" (outer and inner bark) that could be steeped normally like any tea. If so, that may be best for a meal in the work environment.)

Since school teachers are on holiday now or soon, it is a good time to experiment to find a dose that works.

Whether it creates an urgent need to toilet, that may depend on the dose. I find that with my optional dose of 1/8 with a meal.

I am currently checking to see if 1/8 a teaspoon with a meal, when it is a six-meal day, is still the right dose. Maybe taking it four or five times a day is my limit, with a sixth 1/8 teaspoon dose too much.

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Thank you so much!!

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Profile picture for researchmaven @researchmaven

Well, I cannot eat fish or chicken w/o constipation. I do not vomit. An orange its juice would send me into IBS-C purgatory. Bland foods are my ticket too. For your Q, I would use a seed butter that is smooth. Lots of folks like sunflower butter. It is nutritious and sold in grocery stores by the peanut butter. Glad egg whites are working for you. Best to you, too!

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@researchmaven dr isn't concerned re throwing up orange. Cannot reorder GES test for 2 months to redo. Doc wants a CT angiogram. That was the negotiation, I do this to please him & he'll do another GES to please me. Sounds like a marriage. Fair trade

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I also have a redundant , twisty colon. My colonoscopy was very painful. I take Biogest also known as Thorne a digestive enzyme helps with digestion and take Meta Mucil capsules seems to help. I also get filled up very fast and have a sluggish digestion. I drink lots of water and coffee seems to help. I also feel nauseous alot due to this.

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