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Mycobacterium abscessus and ARIKAYCE

Posted by toms1982 @toms1982, Dec 4 11:21am

I was recently diagnosed with mycobacterium abscessus with the erm41 gene. Because of that gene the antibiotics (and other ones) I used when I had MAC 3 years ago will not work on this. I am soo going to be on ARIKAYCE. has anyone been treated with this drug for a similar diagnosis?

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toms1982 | @toms1982 | 6 hours ago
In reply to @jamyhollon "I am currently finishing Arikayce treatment day 28. I have M. abssessus but additionally later MAC..." + (show)
@jamyhollon

I am currently finishing Arikayce treatment day 28. I have M. abssessus but additionally later MAC +. Did not begin the Arikayce until I failed linezolid and tedizolid. The Arikayce was specifically for M. abssessus but I was also told (I think) to treat MAC as well. So, a little bit different than your situation.

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I started with Arikace IV treatment two weeks ago. Besides getting extremely sick right away it started shutting down my kidneys (did permanent damage). They stopped that drug and switch to another 2 drugs by IV and are running it a half the dosage right now and I will be on them for the next 4 moths. Next week they start me on the Arosal version of arikace so it will go directly to my lungs and bypass the kidneys. Will see how that works out.

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