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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)

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@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

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Replies to "Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression..."

Parus ,what all are you taking?

Who says you are being weak. Chronic pain is exhausting both physically and emotionally. You're NOT weak, YOU ARE EXHAUSTED!!

I too have fibro, so I understand the struggle of dealing with pain and depression. But you are not pathetic or weak. Yes, it's difficult to do normal daily activities, but giving up is not an option for us. I have moments when I am sad not just because of the overwhelming pain I'm feeling but also for not being able to do all the fun activities my family used to enjoy. I don't know you, but the fact that you recognized that you are weak in itself tells me that you are a strong person who is dealing with pain. Hang in there.
Walking for 30 minutes every day helps me feel better. Try it and see if it makes a difference.

Keeping busy helps me a lot.  I try to go to a heated pool as often as I can.  Sometimes I just curl up with a heating pad. Lots of activities and responsibilities help keep me going.  On days when I have a flare, I just do my best.  If I can't get things done I will turn it into a mental health day, and be good to myself!

One thing that helps me is magnesium us fibro folks need more then regular people I take about 450 mg a day before bedtime.but flare ups, nothing helps Epsom salts bath is about the only thing that helps me

Sounds great. Bi cannot get in tub without someone to help me out. So shower and heating.. we don't need heat in our pool. This is Texas. But for 2 yrs now weather has really been great. One month August. Hot hot. Expensive air. And with ran I hate Central air blowing me. God bless all of you and let's jointly pray for healings.

Prayers for healing, in the precious name of the Most High.  While pain can definitely be a great teacher, there ate other ways we can learn. Instead of asking "why me" I have learned over the years to say "Why not me?". I am the clay and He is the Potter.  Cracked pots are still beautiful, because they let the Light shine through. Peace and love, my friends.

Fibrowarriors are some of the strongest people I have ever known.  We do what we have to do for out families' sake.  For our own sake.  Sometimes we push through pain because if we don't get up off that sick bed we will cease to feel like a human being.  Then we pay the price for having done just one thing a normal person does. I am trying to pace myself.  I only have so many "Spoons."

You a re not weak  You are Fibrowarrior Strong.  Nerve pain is one of the worst.  I am on Lyrica finally.  It is amazing the difference in my life.  I also take magnesium and ginko biloba.  Cymbalta and Flexeril at bedtime. Mobic for joint pain, as needed. Here's hoping that you find a regimen that works.  You are worth it!

@parus

You are being very hard on yourself. Thinking of, and calling yourself "pathetic" and "weak" only hurts your tired mind more. Pain is exhausting and depressing, as you know. What we tell ourselves reinforces the old messages we got originally from parents, spouses, siblings or other "authority" figures in our lives. One of the first things I had to learn was to stop calling myself names. I used to think and say out loud to myself, "Stupid", "Dummy", "Lazy", "Clumsy", etc. because that's what I heard about me from adults running the orphanage where I spent 7 years of my childhood. It has taken me years to stop putting myself down and to see that I am a talented, smart, action - oriented woman. I have a Master's degree and have had a very successful career, in spite of my childhood. The only way I could have done those things was that I learned to stop putting myself down.

My hope for you Parus is that you can begin to see your value as a loving and loveable person. You have an illness that causes great pain, but that doesn't mean you lack value. You are a talented artist from what I've seen, and you are expressive in writing as well. Even without those talents, you are a person who deserves human dignity and love. I hope you love yourself and begin giving yourself positive messages. I know it's hard when you're in pain and suffering from depression. This is when it's especially important I think. Be kind to yourself. I used to put my arms around myself and hug me like I had longed to be hugged as a child. I would close my eyes and imagine all the little "Gails" at different ages and imagine myself pulling all of them close and hugging them all, telling them that I loved them with all my heart. I cried every time I did that. I would also imagine putting a little "Gail/me" in my lap and talking gently and lovingly telling her all the wonderful things I loved about her. By repeating this process whenever I needed to, I slowly began to trust myself as a loving and loveable person. I hope this is something you will try, even though you may feel awkward at first. It's new behavior, which always feels awkward and unnatural at first. The longer you do it, the more natural you will feel. I'm hoping the best for you.

Gail
Volunteer Mentor