← Return to Still have symptoms after surgery

Discussion

Still have symptoms after surgery

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (14)
Comment receiving replies
@mikhailtsapenko

Nevertheless, my CT and PET CT and MRI scans are also ok, so i just wondering if anyone has symptoms of NET without substract on the scans and without increased lab test?

Jump to this post

Replies to "Nevertheless, my CT and PET CT and MRI scans are also ok, so i just wondering..."
phyllisden | @phyllisden | 4 days ago

Mikhailsapenko, my experience was similar to yours in that I had been in/out of the ER for 11 years prior to having a blockage in my small intestine. And there was the main neuro tumor and many others. Of course over those 11 years I’d had multiple CT scans and a couple of MRIs, but they showed nothing. As it turns out, my tumors do not show up on these scans. That was in 2018. Since then I only have Gallium 68 Dotatate PET/CTs as that’s the only way they can see what’s going on with the tumors that are scattered around my body. Maybe that would be an option for you.
I understand how frustrating this can be, but glad you found this group as you navigate this situation.

VIEW AND REPLY