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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@littleonefmohio

Hello. I believe I have Fibro also. Even though my doctor called it something else. My aunt has it and she kept telling me I had it and I kept dismissing her. I was going to the doctors for pain and numbness in my hands. When I went nothing was going on so pretty much I was pronounced crazy I am sure. One doctor went so far as to say I was trying to get false worker's comp and I was not even filing for workers comp. The rhematory doctor I went to called it myalga even though I had a lot of the trigger points. Most doctors do not or did not believe in Fibro. so I was dismissed of wanting pain meds. No, I am not addicted to anything. I have a problem taking medicine because I do not want the side effects or the after effects. Besides trying different medication for depression some which is used for Fibro. I did not stay on them long because of side effects. I did notice that water therapy did the most good for me. Could not continue to go because of money issues but I know after a few sessions I felt so much relief from pain. I was on 12 different medication at one time when I realized I was taking one medicine to compensate for another and so on. I got off of all of them but the IBS medication and muscle relaxer. These I take as needed so am not on them all the time. The rest I through away and did feel better for the most part. The medicine was causing me more problems than the problem itself. I am not a doctor or nurse so this is my own personal observation. Everyone is different and different things help them that did not help me. Am I still in pain. Yes all the time. I learned if I moved instead of just sitting or laying down I feel better. Walking is good for you. Some days the pain is worse than others. Some day my depression is worse than others. I get by in thinking to my self there is people out there so much worse than you are and I need to just keep going and quit feeling sorry for myself. I believe God has brought me around too. This is my own personal experience and I am not telling any of you that you should do the same. Everyone is different and I pray you find the right medication and right exercise for you. God bless.

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Replies to "Hello. I believe I have Fibro also. Even though my doctor called it something else. My..."

Hey, I enjoyed your post for a couple of reasons. You are so right about being called “crazy”. If it weren't so sad I would laugh because I am quite sure that I have been called many similar names. I think the worst thing is to accidentally see the letters “NOI” meaning no obvious illness in bold magic marker written on your chart. I once went into an emergency room because I could walk without falling to the side. I was given an MRI, a CT, a gallbladder US, a heart exam,and others amounting to thousands of dollars of tests. Their diagnosis? I must have accidentally taken too much of my meds, which of course had not! The one thing they didn't do was done in the doctors ofice the next day:the main reason for imbalance: a ear exam. Turns out I had ear inflammation that virtually closed off the ear canal, Over the years the stories really add uo for all of us. Second reason, I like your positive attitude. Moving when we can does help. And for those of us who practice a faith, it means that we always have someone that we can talk to, cry to, when we don't want to upset those we love. This, too, comes from my own beliefs in respect that others have differing methods of helping themselves. Be blessed1