Yes! At first I felt the same way! It’s been a long ass 6 months! What are we to do? I do not know if the pain will ever go completely away but I do need my life back and will do what I have to do to regain more of my strength and hopefully be in less pain. Do remember, our brain is very powerful! A small ache can become disabling if we let it. The infusion is done, we get the side effects from it that no one told us about. Had we been told, might we have still received the infusion, maybe, maybe not! One thing for sure, I’m scheduled for another infusion in June, nope, is not going to happen. I honestly feel, we need to just get up daily, do what exercise we can to keep our mobility. I am Right handed and I shared with my wife, I’m not going to have someone else wipe my A$$ because of a poor decision that I made.
Please, I know it is not easy, try! Try to focus less on the pain and more on, who is in control here! See a physical therapist and get the proper exercises to help you regain strength and decrease the pain! My pain might never go completely away, I just do not want to take the time to let it control me anymore! I pray you seek help and Relief!