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Still have symptoms after surgery

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (14)
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@mikhailtsapenko

Thank you very much!
Well it was partial resection around 50 cm with ileocecal valve. I managed to hold my weight till last month, but after stress i lost around 8 kg.
Well onclologists here told that you had complete surgery and you should not have such symptoms during last year. But on November i read podcast of NetWise, where Dr. Eric Liu told that a lot of patients still feel symptoms, so that info was stressed to me.
After that my oncologist told to try Orctreotide for some time to check

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Replies to "Thank you very much! Well it was partial resection around 50 cm with ileocecal valve. I..."
vinnie694 | @vinnie694 | 5 days ago

I’ve been on Ocreotide for about 18 months it has worked great on the hot flashes, started working within days of the shots. I was experiencing over 25 episodes daily. .. I hope they find something for you, for me they were a constant reminder…

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Teresa, Volunteer Mentor | @hopeful33250 | 5 days ago

I'm glad that you found Dr. Liu's podcast helpful,@mikhailtsapenko. So, if I understand correctly, your oncologist will begin treating you with Octreotide?

If you would like to learn more about NETs, here is a link to a website where you will find video presentations from specialists in the field of NETs.
https://www.youtube.com/@neuroendocrinecancerawaren6842/featured

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