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Questions to Ask and Treatment Options
I recently moved this past summer and have my first appointment with my new Neurologist at Duke in January. Diagnosed 3 years ago with (CIAP) Chronic Idiopathic Axonal Polyneuropathy. My pain levels have gotten pretty consistent over the past 4-5 months.
Over the past 3 years I have tried the following with no luck:
Gabapentin
Duloxetine
Alpha Lipoic Acid-R
Lidocaine Cream
Pregabalin (still taking)
Acetyl L-Carnitine (still taking)
I did have success with the Pregabalin for about 4 months, but then it stop working.
Anyone have any suggestions on what I should ask when I go to my appointment as far as treatment? They my run the labs again and do another EMG-NCS, but I doubt they will find anything new.
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That's a tough one but I think I might ask if they know of any new research being done or possible clinical trials available that might help. I would also ask if they have any suggestions for complementary or alternative treatments that might be helpful. Hoping other members may be able to provide some better questions for you to ask.
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4 ReactionsThey recently had a clinical trail with NEVRO HFX Spinal Cord Stimulator for Diabetic Neuropathy. Not sure if I am at the point to consider something like that. Others have mentioned Low Dose Naltrexone as treatment. I just want to be as prepared as possible since these appointment are few and hard to get scheduled. Thanks
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1 ReactionI've been taking PreGabalin 75mg 3x a day. It helps with some of the neuropathy issues still so I'll probably be on it for life. Still have foot numbness, but that's more of a nerve damage issue as well as maybe from CVI in my lower legs. I will say that it's the only Rx worth the money as far as feeling a difference goes.
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1 ReactionI started 75mg and 150mg of Pregabalin and it did nothing. Up it to 300mg and it was incredibly effective for about 4 months and the pain return. Up it to 450mg and got nothing. Staying on 300mg unit my next Neuro appointment in 3 week. Maybe they can add something or just take me off of it.
Maybe some of these researchers could look into genetic profiling to see if there's a connection between DNA makeup and how one might react to a particular medication. I had my DNA tested through the Mayo Tapestry project. It did say that I got little "kick" effect from caffeine which I thought was interesting, but not useful.
If I miss the night dose of PreGabalin it doesn't affect me much.
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1 ReactionHow was your neuropathy discovered? Testing? What were your symptoms?
My Neuropathy was diagnosed on a EMG-NCS I had 3 years ago. Symptoms include: foot pain (numbness, tingling, aching burning) and bodywide muscle twitching
I had success with months of accupuncture. I no longer have pain - just the numbness and burning. The acupuncturist did tell me at the beginning of treatment that he likely wouldn't be able to help with the numbness - just the pain.
I have seriously considered doing this. Just hesitant on the investment and if it will work.
I have numbness in my toes and have not been diagnosed. Which Dr should I see? The numbers want gradual, one day it was just there! It’s a miserable feeling.