Connect
← Return to Stage 1, very treatable invasive lobular carcinoma
Discussion
Stage 1, very treatable invasive lobular carcinoma
Breast Cancer | Last Active: Jan 5 3:00pm | Replies (37)Comment receiving replies
Diagnosed stage 1 on 10/10/24. Went with lumpectomy as 3 different MDS from 3 different hospitals said the same thing.
Radiation starts next week. I do wonder at times if I should have had mastectomy.
Because it was invasive lobular I am having whole breast radiation, which I did not know ahead of time. Now I am at risk for heart and lung complications since it’s my left breast that will be radiated.
I am a nurse and wish it could have all been discussed ahead of time from surgical medical and radiation oncologists viewpoint.
My physician team are from Dana Farber, Mass General, and Brigham Women and I do feel like I have to trust what they say. They all agreed.
Best of luck.
Replies to "Diagnosed stage 1 on 10/10/24. Went with lumpectomy as 3 different MDS from 3 different hospitals..."
@kakc19 You may already be in radiation treatments. I also had whole breast radiation for lobular early stage after lumpectomy on my right breast. It helps if you practice your breathing. They will probably have you hold your breath during radiation. The first day I felt like a failure with my breathing. Went on YouTube that night and found some videos on breathing during radiation. If you press your tongue against the roof of your mouth and close off your throat, it helps. Good luck to you! You've mentioned 3 top hospitals that are usually at the top of their game on protocols. And they agreed so...
I have invasive tubular carcinoma in both breast and maybe cancer in the brain. I’m meeting with the surgeon on Wednesday for the first time. I’m praying to make good decisions and for the doctors to be able to help me. This is scary
Connect
Hi ladies! I was treated at Dana Farber after a lumpectomy for ILC Stage 1, grade 2, 1.8cm, no nodes in Nov 2022 at 57 yrs old, 19 radiation treatments on right breast. I did get a second opinion at Mass General regarding surgery option and both recommended lumpectomy - I got in sooner at MGH so had lumpectomy 6 weeks later. I'm happy with my decision but we all worry about reoccurrence and surveillance which is not consistent among oncologists. Lobular is finally getting more attention but even my MO at Dana Farber still considers it "similar to ductal and I had to beg to have MRI surveillance. I'm now 59 yrs old, and 18 months into Letrozole which has pushed me into osteoporosis but feel fortunate my lobular was caught early!! Good luck!!