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Stage 1, very treatable invasive lobular carcinoma
Breast Cancer | Last Active: 1 hour ago | Replies (12)Comment receiving replies
Diagnosed stage 1 on 10/10/24. Went with lumpectomy as 3 different MDS from 3 different hospitals said the same thing.
Radiation starts next week. I do wonder at times if I should have had mastectomy.
Because it was invasive lobular I am having whole breast radiation, which I did not know ahead of time. Now I am at risk for heart and lung complications since it’s my left breast that will be radiated.
I am a nurse and wish it could have all been discussed ahead of time from surgical medical and radiation oncologists viewpoint.
My physician team are from Dana Farber, Mass General, and Brigham Women and I do feel like I have to trust what they say. They all agreed.
Best of luck.
Replies to "Diagnosed stage 1 on 10/10/24. Went with lumpectomy as 3 different MDS from 3 different hospitals..."
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Hi ladies! I was treated at Dana Farber after a lumpectomy for ILC Stage 1, grade 2, 1.8cm, no nodes in Nov 2022 at 57 yrs old, 19 radiation treatments on right breast. I did get a second opinion at Mass General regarding surgery option and both recommended lumpectomy - I got in sooner at MGH so had lumpectomy 6 weeks later. I'm happy with my decision but we all worry about reoccurrence and surveillance which is not consistent among oncologists. Lobular is finally getting more attention but even my MO at Dana Farber still considers it "similar to ductal and I had to beg to have MRI surveillance. I'm now 59 yrs old, and 18 months into Letrozole which has pushed me into osteoporosis but feel fortunate my lobular was caught early!! Good luck!!