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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (104)Comment receiving replies
Replies to "I was just diagnosed with Jak2/ET and had a bone marrow biopsy that ruled out other..."
Welcome to the ET club.
ET is indeed very rare. You'll find so many of us here because this forum brings us together from all over the world.
For most of our primary care physicians, each of us will be the only ET patient in her or his career. So it's really hard to get the info we need, especially when the diagnosis leaves us in shock.
That's why it's great you've found this forum! Here is where your questions will be answered.
Alas, ET isn't just for our golden years. It occurs in young people too. I really like that you've been assured: There is NOTHING we do to cause ET. Nobody understands yet what sparks the mutations that drive ET.
To encourage you: HU will probably ease your ET symptoms (headaches, light-headedness, fatigue). It's true, your platelet count isn't extreme, but you might welcome the relief HU can bring.
You're among friends here.
So sorry. Hope you feel better soon.