Living with MDS

Posted by momz @momz, Sep 4, 2023

I finally got my answer to what I have and trying to wrap my mind around it.
I am an ovarian cancer survivor of 20 years and have MDS for the last 7
Currently on watch and hate to even say wait!! What is the longest someone has had with no treatments? And what was the reason for treatment when it was needed?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

I've had two bone marrow biopsy. As for sequencing I don't believe so.

REPLY

My husband was on watch and wait for 2.5 years. Hgb was down to 8, he had heart stents in March, and vascular surgery on both legs (Oct/Dec). Docs want his hgb. higher for optimum healing and health. First shot yesterday, so now we watch and wait to see how it helps. 🙏🙏🙏 Good luck to you! ❤️

REPLY
Please sign in or register to post a reply.