1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

dais | @dais | Mar 6, 2018

Hi. I am new to this site and have never posted anything before so I'm not sure if this will work. Fingers crossed. I am 47 and in so much pain and am hoping to find some inspiration on how to live again. I've been burned, blocked, injected, medicated, psychologized, specialized, ugh. I'm sure you all know the drill..... any words of wisdom ?

REPLY
1 reply
lioness | @lioness | Mar 6, 2018
In reply to @parus "Greetings once again ye troopers of fibro. I had a surprise. I am not much into..." + (show)
@parus

Greetings once again ye troopers of fibro. I had a surprise. I am not much into fb, but I belong to a couple of art groups that are good ones-I think. Amazing the talent that is out there. I posted a painting I had been working one and the administrator made it the cover photo. With all of the pain, etc. this brightened my day. This is the watercolor that became the cover photo for the week. I will add it here for you fibro folks or anyone else stopping by.

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Maybe you,'ll get back into painting since your feeling better and congrats on d being an apt.In Pa the state did the same turned barracks into homes for people

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dais | @dais | Mar 6, 2018

It worked! I was diagnosed with Fibro and Chronic Migraines at Mayo Clinic about 5 years ago. Before I went to the Mayo it was a rollercoaster ride of different specialists, pain clinics, neurologists. They all had different diagnosis and "treatments ". Just like others in the post, it has just been a blur of different drugs and procedures that didn't work. Going to the Mayo was such a blessing because I finally received answers and help. (I still go every three months) BUT, I feel like I have gotten to the point of no return. The pain is so intense and unrelenting lately...like every cell in my body is screaming. I was hoping to reach out to people who know what I'm going through. That may have new ideas or words of wisdom. I have a great family, friends, etc. but they don't know what it is really like and some days I just can't fake it anymore. So sorry to be so wordy...thank you

REPLY
5 replies
Parus | @parus | Mar 7, 2018
In reply to @parus "Greetings once again ye troopers of fibro. I had a surprise. I am not much into..." + (show)
@parus

Greetings once again ye troopers of fibro. I had a surprise. I am not much into fb, but I belong to a couple of art groups that are good ones-I think. Amazing the talent that is out there. I posted a painting I had been working one and the administrator made it the cover photo. With all of the pain, etc. this brightened my day. This is the watercolor that became the cover photo for the week. I will add it here for you fibro folks or anyone else stopping by.

Jump to this post

@JustinMcClanahan The painting or the cow...Grin. I hit physics class, threw up my hands and turned to art.

REPLY
Parus | @parus | Mar 7, 2018
In reply to @parus "Greetings once again ye troopers of fibro. I had a surprise. I am not much into..." + (show)
@parus

Greetings once again ye troopers of fibro. I had a surprise. I am not much into fb, but I belong to a couple of art groups that are good ones-I think. Amazing the talent that is out there. I posted a painting I had been working one and the administrator made it the cover photo. With all of the pain, etc. this brightened my day. This is the watercolor that became the cover photo for the week. I will add it here for you fibro folks or anyone else stopping by.

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@oregongirl yup you did. Don't ask me where I posted thus...don't remember.

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grandmaR | @grandmar | Mar 7, 2018
In reply to @parus "Greetings once again ye troopers of fibro. I had a surprise. I am not much into..." + (show)
@parus

Greetings once again ye troopers of fibro. I had a surprise. I am not much into fb, but I belong to a couple of art groups that are good ones-I think. Amazing the talent that is out there. I posted a painting I had been working one and the administrator made it the cover photo. With all of the pain, etc. this brightened my day. This is the watercolor that became the cover photo for the week. I will add it here for you fibro folks or anyone else stopping by.

Jump to this post

LOL!!!!!!

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Texas Freedom | @oregongirl | Mar 7, 2018

@dals, I am so sorry to hear of the road you have traveled. I believe I could say I know some of what you have faced. Every doctor has said, well, I don't know maybe your need more rest, or lets check this and that. How many years did I walk this earth and did not know I had RA. Now I found out I am at Stage 3 on Kidney Disease...How long has that gone overlooked. I finally have an appt at the Pain Clinic at the University. I really don't want any narcodics. But, a stronger dose of Ibprophen. I pray that you have some relief. Even a day of no pain will make you feel like there is a chance that you will someday be pain free.

REPLY
16 replies
bonnieh218 | @bonnieh218 | Mar 7, 2018
In reply to @oregongirl "@dals, I am so sorry to hear of the road you have traveled. I believe I..." + (show)
@oregongirl

@dals, I am so sorry to hear of the road you have traveled. I believe I could say I know some of what you have faced. Every doctor has said, well, I don't know maybe your need more rest, or lets check this and that. How many years did I walk this earth and did not know I had RA. Now I found out I am at Stage 3 on Kidney Disease...How long has that gone overlooked. I finally have an appt at the Pain Clinic at the University. I really don't want any narcodics. But, a stronger dose of Ibprophen. I pray that you have some relief. Even a day of no pain will make you feel like there is a chance that you will someday be pain free.

Jump to this post

@oregongirl, for yourself please think hard about wanting a stronger dose of ibuprofen. I am also in stage 3 kidney disease brought about because of ibuprofen use. I no longer use ibuprofen or any other NSAID because of their ill effects on your kidneys.

REPLY
lioness | @lioness | Mar 7, 2018
In reply to @dais "It worked! I was diagnosed with Fibro and Chronic Migraines at Mayo Clinic about 5 years..." + (show)
@dais

It worked! I was diagnosed with Fibro and Chronic Migraines at Mayo Clinic about 5 years ago. Before I went to the Mayo it was a rollercoaster ride of different specialists, pain clinics, neurologists. They all had different diagnosis and "treatments ". Just like others in the post, it has just been a blur of different drugs and procedures that didn't work. Going to the Mayo was such a blessing because I finally received answers and help. (I still go every three months) BUT, I feel like I have gotten to the point of no return. The pain is so intense and unrelenting lately...like every cell in my body is screaming. I was hoping to reach out to people who know what I'm going through. That may have new ideas or words of wisdom. I have a great family, friends, etc. but they don't know what it is really like and some days I just can't fake it anymore. So sorry to be so wordy...thank you

Jump to this post

So sorry for the pain you went through now knowing what you have you can find the right help. A pain Dr. Can help you I've had fibro 30 yrs and it has gotten worse since I'm 75 now The rheumatologist I have always gone to put me on Cymbalta this is helping .I take Tramadol and Meloxicam In morning I drink Ginger,Tumeric tea they are anti inflammatory There's are spices you can drink more if needed.A hot shower relieved the pain Tens unit for those tight muscles stretching your muscles light exercising I do a chair exercise.Sorry I can't help for migrants ,cool washcloth and dark room help hope you get some relief

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