Need decision help how to proceed with hearing aids, your experience

Posted by charlotte12 @charlotte12, Dec 11 4:34pm

Right now I have hearing aids through the audiologist who is connected to an ENT clinic. My trial period is about to end, no insurance coverage,
cost $3200 for Phonak, paid already $1200 for the trail period with refund guarantee, the hearing aids are good, the issue is the cost. Costco may have comparable, good hearing aids with less costs, same benefits in warranty, ... Costco will accept my audiogram since it is less than 6 months old. Is it worth to invest $65 Costco membership, travel, appointment time to save some $? Did you do something like this?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@julieo4

There are a couple very active HLAA chapters in Colorado. Have you affiliated with them? As I have said before, if the people who have hearing loss would get on the bandwagon to effect change, more attention would be given to hearing loss. There are obviously reasons why this doesn't happen. Unfortunately.

The Americans with Disabilities Act clearly states that if people do not ask for accommodations of venues, they need not be provided. There are tons of hearing loops in the USA, but most are in regions where HLAA members have educated and advocated for them. That is just a reality.

Your concerns are legitimate. AARP does give coverage to hearing loss, but infrequently. There are so many other aging issues to cover. Not excusing them, but realistically speaking.

No easy answers or solutions.

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Very well said. No easy answers or solutions.
I have had a very stressful year but I will join my local chapter. If not this year because of the holidays but for sure in January.

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@daveshaw

Tell me more about putting a loop in your home. Who can do it and how much does it cost?
As far as other venues in Denver having telecoil systems I can only speak to movie theaters and when I ask they look at me like I am speaking a foreign language and suggest a clumsy device to hang around my neck. Quite frankly it is cumbersome and I have removed it and gone back to my hearing aids.
Lawyers have made a living filing lawsuits when restaurants and other venues don’t provide access for handicapped people to get in and out and use the restroom. Why don’t people with hearing loss get the same consideration.
Telecoils would be great if every venue had to install them just like Auracast will be great if it works universally all over the country. We really don’t have anyone that is strongly advocating for us because we don’t use our voices and sheet numbers to demand it and our elected representatives don’t demand it.
Do you ever read anything about hearing loss in the AARP bulletin or magazine?
I know they are working on finding a way to restore hearing loss in adults by bringing back damaged or destroyed hair cells but where is the urgency and demand from the hearing impaired? There are millions of us in the United States and yet we are invisible. We are paying obscene amounts of money for hearing aids and many lack the insurance to help pay for them. Medicare doesn’t deem it important enough to pay for or considers it cosmetic. CI’s are covered if you can meet their loss of hearing standards but research has been painfully slow in this country.
Just sharing my frustration for all the people that suffer in silence because hearing loss just doesn’t get a seat at the table for far too many people.
Come on people. Demand more attention from AARP. I read about research to restore eye sight but nothing about restoring hearing loss. Until we do we will be at the mercy of overworked Audiologists and overpriced hearing aid manufacturers.

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@daveshaw
Some resources for you
AARP hearing loss portal
https://www.aarp.org/health/conditions-treatments/hearing-resource-center/
There is quite a lot of research about hearing loss restoration with the regeneration of hair cells. Here's one recent posting
https://hearinghealthfoundation.org/blogs/study-identifies-gene-regulators-behind-hearing-regeneration

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