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Red cell therapy: How long does the transfusion take and how often?
Blood Cancers & Disorders | Last Active: Dec 17, 2024 | Replies (4)Comment receiving replies
You’re very healthy, active and are concerned about being derailed by side effects of the treatment. Especially if you’re prone to having reactions to meds. There’s something to be said for quality of life so I completely understand your thought process on this.
You mentioned your doctor suggested trying an immunosuppressant. This is not the same as chemotherapy.
From my experience with having both, chemotherapy for AML and 4 immunosuppressant infusions for an issue related to a bone marrow transplant, I had no side effects at all with the immunosuppressant. The exception was with the initial infusion, which can be quite common.
It might be time for a heart to heart with your doctor to weigh risk/benefits of taking the immunosuppressant to help potentially slow the progression of the LGL cells.
In the mean time, the transfusions may keep your energy level up.
Anyway, I hope I answered your questions about ‘red cell therapy’ in my previous reply.
Are you all set for the holidays?
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I saw my Hemo, Oncologist, today, before it was just a phone conversation. What he wants is for me to have 4 weeks, once a week of antibody infusion. He said my immune system is breaking down my red cells. The 3 immune system tests were in normal count area. Things that were discussed today were acquired hemolytic anemia, B12 deficiency and LGM. he is going to give me time to see if my lab values are going down, labs every 6 weeks. Thank you so much for answering my posts, it makes you feel good to know people care. I am ready for Christmas and am wishing you and yours a most joyous holiday season. Love, Linda