← Return to Red cell therapy: How long does the transfusion take and how often?

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@linepa2002

I think he is suggesting immune whatever, my immune system was just checked with my blood work and all three were in normal area. I am just getting scared of side effects, seems I have problems with everything. I just feel this is not needed as I am 83 years old I do my own cleaning, cooking, laundry, grocery shop and just last week was at the mall for 2 hours shopping, went for dinner and stopped for a few groceries before heading home. my legs ached but that went away after i sat for awhile.

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Replies to "I think he is suggesting immune whatever, my immune system was just checked with my blood..."

You’re very healthy, active and are concerned about being derailed by side effects of the treatment. Especially if you’re prone to having reactions to meds. There’s something to be said for quality of life so I completely understand your thought process on this.

You mentioned your doctor suggested trying an immunosuppressant. This is not the same as chemotherapy.
From my experience with having both, chemotherapy for AML and 4 immunosuppressant infusions for an issue related to a bone marrow transplant, I had no side effects at all with the immunosuppressant. The exception was with the initial infusion, which can be quite common.

It might be time for a heart to heart with your doctor to weigh risk/benefits of taking the immunosuppressant to help potentially slow the progression of the LGL cells.

In the mean time, the transfusions may keep your energy level up.
Anyway, I hope I answered your questions about ‘red cell therapy’ in my previous reply.
Are you all set for the holidays?