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blondin925 avatar

Is it just me, or do others suffer with no help too?

Breast Cancer | Last Active: Jan 5, 2025 | Replies (40)
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Profile picture for kimogi57 @kimogi57

I had horrible pain that was from exemestane and Anestrozole. Much worse with exemestane. I quit taking all after a year and I'm almost back to normal. Every step up my stairs at home hurt LH and I had to hug the handrail. Walking just a few minutes and my hips hurt LH. Like He'll. It's a real thing. My fingers still hurt at times and on my rt hand, and it feels like they don't want to open when I make a fist. My personality also changed. I.was so mean and angry.

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Replies to "I had horrible pain that was from exemestane and Anestrozole. Much worse with exemestane. I quit..."
lifetraveler | @lifetraveler | Dec 18, 2024

Hi! @kimogi57:

I feel your pain, for "hurting LH" is very real because I experienced similar aches and pains from taking AIs also...

I started taking Anastrozole on 1/18/24; experienced loads of awful side effects such as: joints pain, trigger fingers, muscle pain all over my body, etc., almost immediately after taking this AI medicine. Due to the fact that I declined the radiation treatments (for fear of its potential long-term side-effects) against my oncologists' recommendation, I decided to tough it out and continue taking Anastrozole because my cancerous cells are ER95%+, PR+, and Her2-, and taking any AIs is the only avenue for me to keep those BC cancerous cells from popping out anywhere in my body:(. Fortunately for me, my kind-hearted PCP recommended PT/OT (physical therapy/occupational therapy) to strengthen my weakened muscles, bones, & aching joints and gradually keep my fingers moving daily.

Sorry for such a lengthy note, Kimogi; but I wish to share with you my own personal experience to show there's hope to mitigate pain under any circumstances. Please bring up all your side-effects and discuss with your physicians again to see if they'd recommend any viable solutions for you.

Best wishes to you all for the new year!

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