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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (104)
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@williamsjen

Thank you for the helpful information. I am seeing the dr today to discuss first time since blood work came back
I question the chemo word throws me for a loop but I know there are a lot of people taking this bill
Always been healthy never had to take medicine but hearing from people like you has made this visit easier. Thank you .

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Replies to "Thank you for the helpful information. I am seeing the dr today to discuss first time..."
janemc | @janemc | Dec 17, 2024

Getting this diagnosis is overwhelming.

HU has been widely used for a long time -- not just for blood cancers, but also for sickle cell anemia and some "acute" cancers, including mouth cancers.

I was diagnosed at 69 and for me too, having to take a medication daily was new.

I do hope your doctor starts you on a low dose. That lets your body get used to HU with no side effects.

Are you also taking low-dose aspirin? If not, maybe bring this up when you see the doctor today. Aspirin keeps our platelet-heavy blood slippery, protecting us from cardiovascular issues.

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