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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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Hind sights 20/20. It's not intentional I blew the test out of the water. I didn't eat W prior to Thanksgiving. I could not take eating to expect painful stomach distensions. After W & Th I don't know Why I made up my mind then, I won't eat & do the reintroduction. I get my protein in a 30g carton x3 a day. I'm feeling somewhat better. Put on 5 pounds. Actually, I chalked it all up to my redundant torturous colon. Feeding that easy to digest foods. I asked nurse & she asked xray & they said no fasting would not effect GES test. I'm asking my GI Dec 19th appt. Thanks for letting me know what you know abt it, I'm not disregarding what you said
I am just going off of what my GI doctor said and working in the RN field. In Texas the hospital that I had my testing done at that’s one of the questions on the form. Then they asked me in person. It took over two days for the pill to go through. I had to keep going back. Then they said I had gastroparesis which is part of neuropathy.
Has anyone heard of Gabapentin for neuropathy of the stomach?
I had gastroparesis for a while. What helped me was eating small meals through out the day and staying away from filling foods such as pastas and breads. I ate mainly soups, soft veggies and chicken or fish. I also leaned towards liquid protein such as Boost. I tried to meditate after meals to encourage the rest and relax feeling so my stomache would digest. I drank water after my meals so I did not get full on water. For extended energy I would take a teaspoon of peanut butter.
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1 ReactionHave you been checked for Chiari Malformation type 1? This sounds like me. That's what mine ended up.
I also have gastroparesis, but not as bad as yours. My scintigraphy test Showed 18% remaining after four hours, however that was done more than a year ago and I’m a lot worse. I’m nauseated after each meal but I’ve probably been getting too much fiber. I keep my fat at a minimum and eat small meals. I also have Parkinson’s disease With severe dystonia in my hamstrings,, which probably counts more for the worsening of my symptoms. As with many cases of Parkinson’s symptoms develop long before the diagnosis is made. In my case, I have been going to an orthopedic As with many cases of Parkinson’s symptoms develop long before the diagnosis is made. In my case, I have been going to an orthopedic group For my dystonia. But they never made any connection with Parkinson’s and treated me for pain with narcotics. It’s the narcotics which started the Gastroparesis.I do not have diabetes. My primary care provider was treating me for depression with mirtazapine and decided I needed a boost so he put me on Abilify. Within five days, I had severe hamstring pain, which is not changed, but gotten worse over the last three years or so I’ve been treated with Botox and steroids and nothing has worked. So now I’m in the process of getting set up for deep brain stimulation.
The gastroparesis has been hit or miss and trying to calm down. I’ve done everything in the books, including liquid diets. Currently, I can eat some solid food for breakfast, but most of my meals are liquid or blended. I discovered the hard way that too much ofthe fiber really makes a difference.
Current recommendations for fiber, intake are 3 g per meal or 10 g per day. And I think that’s hard to do. One banana has 3 g of fiber and if I eat more than that, I’m nauseated for four hours or more until my stomach empties which sometimes takes five or six hours. Despite probiotics, prokinetics, including domperidone 20 mg three times a day, ginger, iberogast, and several others, things just don’t seem to move. The Parkinson’s really limits your choices with respect to medication’s. My gastroenterologist is pretty worthless. So as you know, dealing with the medical profession who seems to have a limited capacity for knowledge about Parkinson’s and gastroparesis, you gotta do most of the research yourself. Very frustrating.
Gabapentin is used for so many different things that it’s hard to keep track of what it really works for. It seems that many providers will just say let’s give this a try.
I have Gastroparesis also severe belching please help need support
I have finally been diagnosed with gastroparesis due to all tests available. I have moderate nerve damage, neuropathy, severe back and leg problems. I take 75mg of pregabalin given by my doctor to control severe burning, stomach squeezing internally. The pregabalin controls the later but does not help with any back, leg or feet problems. If you decide to take it, be patient there are some side effects
I have gastroparesis, but do not have any of the pain that most of you have. My doctor injects Botox every six months through an endoscopy. He asked me if it helps and I said I didn’t know, but after reading everyone’s posting, I think it must be doing great. Check with your doctors to see if this is possible. I’ve had the test and the food stays at my stomach for a couple of days. I’m learning to control it with eating the right foods. not 100% there, but I’m getting stronger every day and refusing bad foods. I suggest you all try the Botox.