1. < Neuropathy

Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

bgator | @bgator | Dec 5 5:27pm
In reply to @wynesshc "Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and..." + (show)
@wynesshc

Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and part of
my lower legs....tried ever thing from tens to blue laser ,,,,with no results...after a couple of
years of terrible times, my daughter recommend a combination of hydromorph contin and
jamp-pregabalin...it has reduced my neuropathy from a 8 out of 10 to a manageable 2.
I take 6mg hydromorph at 7am and 7pm,,,,200mg pregabalin at 12 noon and 9pm...
Herbert C Wyness

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How did your daughter know about this combination of drugs?

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wynesshc | @wynesshc | Dec 6 11:53am

I am not sure how information travels on this network, so again, my daughter has neuropathy in her arms,
and after much research, she and her then doctor came up with this mix....hc wyness

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Jenny | @fairymystry | Dec 6 6:58pm
In reply to @bigjohnscho "Surely some people have found something that has helped with this awful disease. It would be..." + (show)
@bigjohnscho

Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.

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I believe that the Blueprint for Neuropathy program was a scam for me and several others. Don't waste your 10K on that program. There's a thread about it on this site if you want to know more.

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2 replies
thetillmanthetillman | @thetillmanthetillman | Dec 8 9:18am
In reply to @fairymystry "I believe that the Blueprint for Neuropathy program was a scam for me and several others...." + (show)
@fairymystry

I believe that the Blueprint for Neuropathy program was a scam for me and several others. Don't waste your 10K on that program. There's a thread about it on this site if you want to know more.

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If you decide to buy compression boots but the cheap ones they do the job 80 pounds is tops james ireland

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antonintampfl2009 | @antonintampfl2009 | Dec 9 11:01am
In reply to @alicebrown "Try Nerve Control 911! It works for me! I’ve taken it for 3 years. I have..." + (show)
@alicebrown

Try Nerve Control 911! It works for me! I’ve taken it for 3 years. I have PN diabetic. Pain was excruciating before I found this capsule. I take 2 a day. Also tried cyclobenzaprine & Pregabalin with no effect. I’ve shared this more than once on this website but have never seen it posted. ??? I’m only trying to share what works for me.

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Has not done anything for me after trying it for a full month.

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1 reply
alicebrown | @alicebrown | Dec 9 4:08pm
In reply to @antonintampfl2009 "Has not done anything for me after trying it for a full month." + (show)
@antonintampfl2009

Has not done anything for me after trying it for a full month.

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So sorry. It works well for me. I have diabetic PN in my feet. I am 90 yrs old, a woman. It’s like a wonder drug for me although it’s all natural. No pain as long as I take 2 caps. a day. I tried going off and the pain comes back.

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heisenberg34 | @heisenberg34 | 5 days ago
In reply to @fairymystry "I believe that the Blueprint for Neuropathy program was a scam for me and several others...." + (show)
@fairymystry

I believe that the Blueprint for Neuropathy program was a scam for me and several others. Don't waste your 10K on that program. There's a thread about it on this site if you want to know more.

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Scams usually work this way: amazing patient testimonials. Special discounts if you sigh up today. Don't worry, we offer financing. Sorry, not covered by insurance. No money back guarantee. Only $9000 to $12,000. A bargain to eliminate your pain.

Do a google search for REAL reviews. You will get the answer soon enough.

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biginohio | @biginohio | 8 hours ago
In reply to @kbirchem "One thing that I forgot to post . I have had 3 sets of PRP injections..." + (show)
@kbirchem

One thing that I forgot to post . I have had 3 sets of PRP injections . My feet used to be cold and the feeling and color were not good. My color in my feet is so much better . The feeling and warmth of my feet is also better. I used to take Lyrica . It is an evil, evil medication . It gave me very dark thoughts and anxiety attacks. Wish you the best in your PN journey . KTB

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I'm very interested in use of PRP injections to treat peripheral neuropathy. Was your health care provider suggesting this for treating neuropathy or was it for other foot pains such as plantar fasciitis? You mentioned improved circulation, improved feeling, and color, so would you say improvement to your neuropathy symptoms? Have you had to continue PRP injections? When were your injections as in year/month, how long did you feel improvement, and how often have you had to or will you have to go back and get additional injections? If you don't mind me asking approximately how much were the treatments each time?

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | 7 hours ago
In reply to @biginohio "I'm very interested in use of PRP injections to treat peripheral neuropathy. Was your health care..." + (show)
@biginohio

I'm very interested in use of PRP injections to treat peripheral neuropathy. Was your health care provider suggesting this for treating neuropathy or was it for other foot pains such as plantar fasciitis? You mentioned improved circulation, improved feeling, and color, so would you say improvement to your neuropathy symptoms? Have you had to continue PRP injections? When were your injections as in year/month, how long did you feel improvement, and how often have you had to or will you have to go back and get additional injections? If you don't mind me asking approximately how much were the treatments each time?

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Welcome @biginohio, I'm not sure PRP injections are widely used to treat neuropathy symptoms but I'm also interested to hear more from @kbirchem to learn more about their experience. I did find some research that shows some promise but seems like there needs to be more studies and testing done.

-- Platelet-rich plasma (PRP) in nerve repair: https://pmc.ncbi.nlm.nih.gov/articles/PMC10997806/

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