Anyone living with Essential Thrombocythemia with JAK2?

Posted by lindamarie63 @lindamarie63, Dec 3 10:10pm

Has anyone been living with,ET, jac2 mutation

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yes, first year or so, the blood tests and meds are up/down and sideways, first every week, then every other week, then once a month and now every 3 months. I've been on HU+baby aspirin for almost 4 years now....my count is usually between high 300 and mid-400. I've had a total of 7 covid shots and 4 flu shots. The only shot that affected my count was the shingles shot, but there is a research paper that mentions the shingrix and platelets. My count dropped dramatically, but then regained to "normal" after about 3 months. Then I had to have blood tests every few weeks, until I got back to "normal"......all the best....

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