It is a busy time of year, and by nature, I like a good bit of alone time to recharge. I've put that on hold until the New Year. Every week, a lot is going on. I've had trouble with energy for a couple of years now, I don't think it's worse, but with all the activities, I often feel exhausted.
My platelets are still lower but not in a zone where they want to treat them. They keep telling me that I'm doing well (working, seeing family and friends, walking the dog), but since I don't bleed due to low platelets, they would rather not do anything yet. I'm going to try to get blood work this week, so all of the above may change depending on what the tests say.
@SSJS I'm not taking anything right now, and I don't know anything about my copper. How did you find that out? Would that show up in regular blood work?
This can be a busy time of year with family, gatherings and commitments. How does CCUS affect how you prepare for the holidays? Have you found activities that allow you to pace yourself?
Thank you for reaching out, and checking on those of us that have CCUS.
I for one am doing fine. My last BMB didn't show the mutations that showed up in the 2023 BMB. My numbers are still low but continue to remain stable. My hematologist at the Mayo
clinic in Phoenix mentioned to me that "If the past portends the future that this is something I've probably always had." I go to my regular hematologist for monthly labs, and will be going for another BMB at the Mayo Clinic sometime in June or July. Just as precautionary measure to see
if things are still stable. I continue to wear a mask in overly crowded areas.and will definitely
wear one on our cruise In March/April. I find myself not worrying to much about something I
have no control over.
I wish others in this group a very Merry Christmas and a Healthy and Happy New Year.
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It is a busy time of year, and by nature, I like a good bit of alone time to recharge. I've put that on hold until the New Year. Every week, a lot is going on. I've had trouble with energy for a couple of years now, I don't think it's worse, but with all the activities, I often feel exhausted.
My platelets are still lower but not in a zone where they want to treat them. They keep telling me that I'm doing well (working, seeing family and friends, walking the dog), but since I don't bleed due to low platelets, they would rather not do anything yet. I'm going to try to get blood work this week, so all of the above may change depending on what the tests say.
@SSJS I'm not taking anything right now, and I don't know anything about my copper. How did you find that out? Would that show up in regular blood work?
At any rate, happy, healthy holidays to everyone!
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2 ReactionsThank you for reaching out, and checking on those of us that have CCUS.
I for one am doing fine. My last BMB didn't show the mutations that showed up in the 2023 BMB. My numbers are still low but continue to remain stable. My hematologist at the Mayo
clinic in Phoenix mentioned to me that "If the past portends the future that this is something I've probably always had." I go to my regular hematologist for monthly labs, and will be going for another BMB at the Mayo Clinic sometime in June or July. Just as precautionary measure to see
if things are still stable. I continue to wear a mask in overly crowded areas.and will definitely
wear one on our cruise In March/April. I find myself not worrying to much about something I
have no control over.
I wish others in this group a very Merry Christmas and a Healthy and Happy New Year.
-
Like -
Helpful -
Hug
1 Reaction