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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 2 days ago | Replies (7120)Comment receiving replies
Hello,
I had a back operation in January 2022, in regard to not having a disk between S1-L5. The repair was successful, but I suffered terrible collateral damage from Sciatica in both legs, Piriformis Syndrome in both buttocks, and Neuropathy in both feet. My surgeon said all this happened because pressure was taken off of the Sciatic nerve, of which had been pinched really bad. He said the tremendous pain I was in was temporary, and would ease up after a while. Wrong!! I have been in chronic pain for almost 3 years. I started out on Gabapentin, and after a while, was put on Lyrica. I take 75 mg in the morning, and 125 mg at night. My pain is so bad, that I have to take a narcotic (Ambien) just to be able to get some sleep. Currently, my major pain is in my right buttock, and goes down the back of my right thigh. Also, the Neuropathy in my feet is really bad. So, I know we are all different, but I would really appreciate some help. Thanks, in advance.
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@mhpd9 i feel for you I had a L4-S1 fusion in 2023 because of an accidental twist at 3 weeks and a nurse practitioner a week later telling me I can bend, twist , lift up to 25 lbs I went home and bent to dry my lower legs and had a burning in my back that never improved. After 4 surgeons saying nothing is wrong I seen 2 at Mayo Clinic that found out a screw come loose in my back and their recommendation is a pain stimulator which I’m getting the permanent one put in Tuesday. Being fused into the S1 was a mistake it’s affected the anal nerves and if I rub the tailbone the pain goes to the testicles. I haven’t been able to sleep in a bed for over 7 months because of sacrum is so tender it causes my feet to go numb when laying down. I went thru pelvic therapy which helped tremendously. My legs feel like fireworks going off never know which nerves going off in my legs, even the vibration of the bass in church triggered the nerves in my legs. I went from working full time and about falling occasionally when I bent over to disabled at 52 walking with 2 canes or a Walker and can’t pass up a restroom, if there’s not a scooter in stores I have to leave if I walk 150 feet I’m lucky. I have learned one thing don’t give up if a doctor won’t listen don’t stop until you get an answer. I always print out a list of questions for each doctor to look over and one today said it helps them when doing their dictations. I’m on a lot of medication but seem to get quick relief with Salon Pas patches or now I’ve started using the roll-on you can cover more area. I have to see 2 heart doctors, a Neurologist, Pulmonologist, Hearing, Endocrinologist, Rheumatologist, Urologist, Speech Therapist, Massage Therapist, Pain Management, Physiatrist, Water Therapy, so my schedule is full it was at 5-6 appointments a week for several months. I have to Thank God for a loving wife that’s helped me thru all this. Looks can be deceiving as the picture shows I could show and tell we had 1’ of snow or I could show the whole picture that we only had 6” of snow on top of the curb , I know people judge why’s he on the scooter or using a handicap spot if they only know the truth