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Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 18, 2024 | Replies (15)
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Hi @joycehocm - The first few days very light dizziness mostly when I woke up at night to go to the bathroom, but that could also be related to a prostate medicine I take that causes some dizziness. I was very careful when I walked. After the very first few days, I put in my mind that I will be ok and not worry about it and all has been great since then. I have been on Camzyos since last end of March 2024 and I have a long way to keep taking it. I have no longer angina or any dizziness anymore. I hope this helps and you get better soon.
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Thank you! Your answer helps a lot - I think I will be on Camzyos within the next 4 or 5 months - they want to try a calcium channel blocker first since my symptoms (breathlessness) is mild. Although, I believe that C2s only treat symptoms and Camzyos treats the condition. Anyhow, I do appreciate knowing what symptoms you have had. If you are willing - could you tell me how on earth you are paying for Camzyos - does your insurance cover all of it? We have medicare (which does not cover it) and a private supplemental plan - and they won't tell us what they will or won't do until we have a script and go through pre-authorization etc. etc. etc.