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Support For Those Quitting Prolia

Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (152)

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@jheieck

Thank you for your feedback it gives me a few options to ponder. Out of curiosity I went back and checked my last dexa scan taken May 2024. I was in shock to realize I have now moved to osteopenia category, I guess due to taking Prolia for 6 years? My lumbar spine T score is 0.9 and Z score is 3.0, my total hip T score is -1.1, and Z score is 0.4, my femoral neck T score is -2.3, and my Z score is -0.5. Conclusions indicate osteopenia now and NOT osteoporosis. My guess if is if I go off Prolia those numbers will change quite a bit. I do want to have a CTX blood test to see if I can have dental work in my future, since I am in a holding pattern right now with the two implants. I've never had a CTX blood test, to surprising given the fact that my bone health specialist knew that I was having extensive dental work. My oral surgeon never mentioned it either. Since I'm going to the endocrinologist in early January, I will find out if there's any way I can go off Prolia cold turkey. The bone health specialist wanted me to go on HRT, aka Evista, but I don't really like the side effects that I've read about at all, but I don't want to lose the obvious gains I've made all these years being on Prolia. My only other alternative would be to stay on Prolia and not have the dental work, just have a partial plate made That isn't my first choice, but it might be my safest choice, especially if I would like to transition completely off any drugs. Not easy choices here. I wish I had a crystal ball.

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Replies to "Thank you for your feedback it gives me a few options to ponder. Out of curiosity..."

I have no idea @jheieck what your priority is, or how urgent the dental work is. I would ask your doctor if one or 2 Reclasts could be enough to "lock in" your gains and mitigate rebound. Using the CTX to time going on the Reclast so it is effective, and to monitor any rebound effect, would help. But I realize that delaying dental work may be problematic. I don't know the effect of rebound bone loss on dental work either.

There is a study on Evenity after Prolia but I don't think it was much time on Prolia. Maybe someone can retrieve it.

Have you considered a consult with Keith McCormick (osteonaturals.com)?

Did your bone specialist feel Evista was strong enough to combat Prolia rebound? I am surprised. But with your scores I suppose you can afford to lose some density.