Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@oregongirl

Yes, you work hard at your employment giving your all only to retire and realize, there is NO money going into the bank, just out of the bank. The kids today are different. They saw how we struggled after retirement. They now demand retirement benefits from their employers plus vacation, sick leave you name it. When you are self employed your your employee get the day off. Not you. I made a good living. I make too much to get help, and to little to survive. When my husband became ill, and died, I lost his SS. and his Navy benefit. I went from comfortable to poverty overnight. I am very fortunate. A friend of mine had no one to leave his home to. He left it to me. I lived there two years after he died. But, medical was NILL where I lived in the middle of nowhere. So, sold house and moved to Texas. Best medical I could ask for. I guess I just dont know the games you can play to get this and that from the County. I know a friend of mine lives very comfortable while the County pays her rent and drives her two hours to the doctor and back. I pay my rent and I pay my ride over and back. Does not seem fair.

Jump to this post

I had to drop my long term insurance and I list two rentals I owned. Made me sick.

REPLY
@oregongirl

I just did that this past be June. I sorted out things I wanted to keep and then threw most of that away. I actually gave all of it to my church. I am surprised my church did not send me a mental health expert. I gave away antiques and things I won't mention here that had great value. I was moving to Texas for better health care. Many times I have opened cupboards for something I no longer own. I slowly am replacing things but by they are junk next to what I had. I think I was so physically hurting and thought I would surely die and my poor kids WD be stuck with things none of them want. I hear you and someone needed to rescue be us. Lol

Jump to this post

@lioness @oregongirl @parus My husband retired from the Navy with 30 years of service so I was used to moving a good deal. I too have given or tossed things away in the name of downsizing. Then when I finally am moved in to my 'forever' home, I am looking for things I gave away! The silly things we do!

REPLY
@oregongirl

I just did that this past be June. I sorted out things I wanted to keep and then threw most of that away. I actually gave all of it to my church. I am surprised my church did not send me a mental health expert. I gave away antiques and things I won't mention here that had great value. I was moving to Texas for better health care. Many times I have opened cupboards for something I no longer own. I slowly am replacing things but by they are junk next to what I had. I think I was so physically hurting and thought I would surely die and my poor kids WD be stuck with things none of them want. I hear you and someone needed to rescue be us. Lol

Jump to this post

That's for sure,it now we b not bad them or the money

REPLY
@oregongirl

Yes, you work hard at your employment giving your all only to retire and realize, there is NO money going into the bank, just out of the bank. The kids today are different. They saw how we struggled after retirement. They now demand retirement benefits from their employers plus vacation, sick leave you name it. When you are self employed your your employee get the day off. Not you. I made a good living. I make too much to get help, and to little to survive. When my husband became ill, and died, I lost his SS. and his Navy benefit. I went from comfortable to poverty overnight. I am very fortunate. A friend of mine had no one to leave his home to. He left it to me. I lived there two years after he died. But, medical was NILL where I lived in the middle of nowhere. So, sold house and moved to Texas. Best medical I could ask for. I guess I just dont know the games you can play to get this and that from the County. I know a friend of mine lives very comfortable while the County pays her rent and drives her two hours to the doctor and back. I pay my rent and I pay my ride over and back. Does not seem fair.

Jump to this post

Sorry about your LTI I'm so blessed my son pays mine ,he doesn't want to when I need it so before he married he took it out for me .

REPLY
@oregongirl

Does anyone know if Medicare has a cap they will pay?

Jump to this post

I have Humana they have PPL plans also but I opted for the HMO yes the co,-pay on meds are 7.00 ,others are 0.00 you should look into it Humana also gives you 75.00 each quarter. towards OTC meds like aspirin etc

REPLY
@oregongirl

Does anyone know if Medicare has a cap they will pay?

Jump to this post

Thanks I will.

REPLY
@oregongirl

Yes, you work hard at your employment giving your all only to retire and realize, there is NO money going into the bank, just out of the bank. The kids today are different. They saw how we struggled after retirement. They now demand retirement benefits from their employers plus vacation, sick leave you name it. When you are self employed your your employee get the day off. Not you. I made a good living. I make too much to get help, and to little to survive. When my husband became ill, and died, I lost his SS. and his Navy benefit. I went from comfortable to poverty overnight. I am very fortunate. A friend of mine had no one to leave his home to. He left it to me. I lived there two years after he died. But, medical was NILL where I lived in the middle of nowhere. So, sold house and moved to Texas. Best medical I could ask for. I guess I just dont know the games you can play to get this and that from the County. I know a friend of mine lives very comfortable while the County pays her rent and drives her two hours to the doctor and back. I pay my rent and I pay my ride over and back. Does not seem fair.

Jump to this post

Lucky you. I asked my kids to take over a 300,000 life insurance. They never responded and I let it go. It WD have meant 100,00 to each child. They are to busy to think of the older years.

REPLY
@virtuous69

@clownscrytoo
My word,your story mimics mine to a T and probably many other members too. You are so not alone. I take the same meds, am 70 years old and my spinal stenosis issues add to my pain. I too am a bed potato while I wait for the meds to kick in, and I lay on a heating pad for my lower back stenosis pain. Good thing you have an understanding husband.....so do I and that so helps. I take life one day at a time, cannot volunteer or do the hobbies I like. I stand on God's promises that He will come along side of me. I get physical therapy when a fibro knot or a degenerated spinal disc goes way out of whack. Sometimes I log into the "just want to talk" section of Mayo Connect because I need to vent. I notice that if I have a busy day, the next day is a total wash out. I try to run only one or two errands a day, and the next day I'm down for the count. I no longer feel ashamed. Trying to maintain good posture helps. Computer chair sitting can aggrevate. Drink plenty of fluids. Move when you can. When you can't, rest. May God bless you, show you favor and plenty of friends who understand. Sending you a basketful of love.
Victorious69 (Dori)

Jump to this post

Hi!
Sorry it took so long to answer you.
I am actually scheduled for surgery next Wednesday morning. I am currently doing all the pre-op stuff. I pray this is the answer!
ronnie

REPLY
@audreyb

Don't know if there is a cap?.right now Medicare premium in San Diego is $134 month but some income levels pay more based on incomes over a certain level..suggest you look/read the annual Medicare booklet published and mailed to those enrolled in Medicare . I believe you can request this publication from Medicare.
Liege

Jump to this post

Yes, you can order a booklet. The website is also helpful. Or,. you can also place a phone call. I have found that the reps there are very nice and helpful!
ronnie

REPLY
@oregongirl

I just did that this past be June. I sorted out things I wanted to keep and then threw most of that away. I actually gave all of it to my church. I am surprised my church did not send me a mental health expert. I gave away antiques and things I won't mention here that had great value. I was moving to Texas for better health care. Many times I have opened cupboards for something I no longer own. I slowly am replacing things but by they are junk next to what I had. I think I was so physically hurting and thought I would surely die and my poor kids WD be stuck with things none of them want. I hear you and someone needed to rescue be us. Lol

Jump to this post

Hi!
My hubby and I have moved many times over our 40+ years of marriage. I have become an expert in packing and unpacking. I can pack up a house very quickly!
We are now in what I believe will be our last home (until we can no longer take care of ourselves). When we moved this last time, my husband had to do all the packing. He purged like crazy. Anything we didn't use in a period of time he got rid of. He unpacked. Now, when I look for something, I knew we had, it is gone (because he got rid of it) or he put it somewhere I can't find it.
Guess I cannot complain. He is a God sent.
ronnie

REPLY
Please sign in or register to post a reply.