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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (414)

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@archie2

Hi Folks- Archie here— I’m glad to see the detailed communications and responses. I have seen about 10 of us now who have Arachnoiditis—what a treasure-trove of experience and information!! I’ve had AA since the 1970‘s (before it was fashionable), and until this Mayo blog, I have never talked with another person with the condition. What a gift to find you ALL! Please let’s keep the conversation going. We’re in this together—loneliness doesn’t have to be an option. Thanks to all for contributing! Archie

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Replies to "Hi Folks- Archie here— I’m glad to see the detailed communications and responses. I have seen..."

Have found that this condition has constant new, symptoms, some quite bizarre. Afraid to tell any doctor, because fear they will think i'm crazy. But i have taken so much prednisone, over the years, & i know this drug does bad things to skin & all connective tissue, below. But it's very disconcerting, & most doctor's would find highly, unusual?