Hi @candersen3 My my don’t we have a lot in common! My tumour isn’t in the same location as yours but I also have MS. In 2021, I was having what I thought was an MS exacerbation + daily headaches so I saw my Mayo neurologist and had an MRI. My MS was stable with no active lesions but I had a 9x9x2mm L occipital tentorial meningioma. My (ex) neurologist felt that my symptoms were not related to the tumour but rather to my grief. I had lost my mom 8 months prior. Really??? Needless to say I went to a neurosurgeon. Already long story shorter…I’m an RN and I didn’t want to “watch and wait” because mine was impeding on a critical area so I had the craniotomy.
In the beginning of my whole fiasco, the symptoms I was experiencing were similar to my MS symptoms but were somehow different. I had slightly new and different symptoms along with the usual MS symptoms. I also had daily headaches and new dizziness/balance issues. My vision was “weird.”
There’s no way anyone can answer your question of whether or not a craniotomy would improve your life. The outcome can be different from person to person. I’ve talked with many people who have had great results along with some people who had a far different story. I’m one of the latter unfortunately. My best advice would be to get a 2nd, 3rd or more opinion and make sure that your surgeon is experienced with your type of tumour. Also, find others like you/us! to talk to. I found an amazing support group on Facebook. There are people with many different experiences and outcomes and plans. You can learn a lot from others. The group I found is Brain Tumor Companion. I hope your journey is far more successful than mine!
- Jan